Register      Login
Australian Journal of Primary Health Australian Journal of Primary Health Society
The issues influencing community health services and primary health care
RESEARCH ARTICLE

The advance care planning nurse facilitator: describing the role and identifying factors associated with successful implementation

Jeremy Rogers A , Charlotte Goldsmith A , Craig Sinclair B and Kirsten Auret B C
+ Author Affiliations
- Author Affiliations

A University of Western Australia, Hackett Avenue, Crawley, Perth, WA 6009, Australia.

B Rural Clinical School of Western Australia (Albany), University of Western Australia (Albany Centre), Stirling Terrace, Albany, WA 6330, Australia.

C Corresponding author. Email: kirsten.auret@rcswa.edu.au

Australian Journal of Primary Health 25(6) 564-569 https://doi.org/10.1071/PY19010
Submitted: 21 January 2019  Accepted: 11 July 2019   Published: 19 November 2019

Abstract

Advance care planning (ACP) has been shown to improve end-of-life care, yet uptake remains limited. Interventions aimed at increasing ACP uptake have often used a ‘specialist ACP facilitator’ model. The present qualitative study appraised the components of an ACP facilitator intervention comprising nurse-led patient screening and ACP discussions, as well as factors associated with the successful implementation of this model in primary care and acute hospital settings across rural and metropolitan Western Australia. Semistructured interviews were undertaken with 17 health professionals who were directly or indirectly involved in the facilitator ACP intervention among patients with severe respiratory disease. Additional process data (nurse facilitator role description, agreements with participating sites) were used to describe the nurse facilitator role. The interview data identified factors associated with successful implementation, including patient factors, health professional factors, ACP facilitator characteristics and the optimal settings for the intervention. The primary care setting was seen as most appropriate, and time limitations were a key consideration. Factors associated with successful implementation included trusting relationships between the nurse facilitator and referring doctor, as well as opportunities for meaningful encounters with patients. This study suggests a model of ACP nurse facilitation based in primary care may be an acceptable and effective method of increasing ACP uptake.

Additional keywords: general practitioner, nursing, respiratory disease.


References

Ahluwalia SC, Bekelman DB, Huynh AK, Prendergast TJ, Shreve S, Lorenz KA (2015) Barriers and strategies to an iterative model of advance care planning communication. The American Journal of Hospice & Palliative Care 32, 817–823.
Barriers and strategies to an iterative model of advance care planning communication.Crossref | GoogleScholarGoogle Scholar |

Boychuk Duchscher JE, Morgan D (2004) Grounded theory: reflections on the emergence vs. forcing debate. Journal of Advanced Nursing 48, 605–612.
Grounded theory: reflections on the emergence vs. forcing debate.Crossref | GoogleScholarGoogle Scholar | 15548251PubMed |

Boyd K, Mason B, Kendall M, Barclay S, Chinn D, Thomas K, Sheikh A, Murray SA (2010) Advance care planning for cancer patients in primary care: a feasibility study. The British Journal of General Practice 60, e449–e458.
Advance care planning for cancer patients in primary care: a feasibility study.Crossref | GoogleScholarGoogle Scholar | 21144189PubMed |

Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A (2014) The effects of advance care planning on end-of-life care: a systematic review. Palliative Medicine 28, 1000–1025.
The effects of advance care planning on end-of-life care: a systematic review.Crossref | GoogleScholarGoogle Scholar | 24651708PubMed |

Corbin JM, Strauss A (1990) Grounded theory research: procedures, canons, and evaluative criteria. Qualitative Sociology 13, 3–21.
Grounded theory research: procedures, canons, and evaluative criteria.Crossref | GoogleScholarGoogle Scholar |

den Herder-van der Eerden M, van Wijngaarden J, Payne S, Preston N, Linge-Dahl L, Radbruch L, Van Beek K, Menten J, Busa C, Csikos A, Vissers K, van Gurp J, Hasselaar J (2018) Integrated palliative care is about professional networking rather than standardisation of care: a qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries. Palliative Medicine 32, 1091–1102.
Integrated palliative care is about professional networking rather than standardisation of care: a qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries.Crossref | GoogleScholarGoogle Scholar | 29436279PubMed |

Detering KM, Hancock AD, Reade MC, Silvester W (2010) The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 340, c340

Detering K, Silvester W, Corke C, Milnes S, Fullam R, Lewis V, Renton J (2014) Teaching general practitioners and doctors-in-training to discuss advance care planning: evaluation of a brief multimodality education programme. BMJ Supportive & Palliative Care 4, 313–321.
Teaching general practitioners and doctors-in-training to discuss advance care planning: evaluation of a brief multimodality education programme.Crossref | GoogleScholarGoogle Scholar |

Dixon J, Knapp M (2018) Whose job? The staffing of advance care planning support in twelve international healthcare organizations: a qualitative interview study. BMC Palliative Care 17, 78
Whose job? The staffing of advance care planning support in twelve international healthcare organizations: a qualitative interview study.Crossref | GoogleScholarGoogle Scholar | 29793469PubMed |

Gott M, Gardiner C, Small N, Payne S, Seamark D, Barnes S, Halpin D, Ruse C (2009) Barriers to advance care planning in chronic obstructive pulmonary disease. Palliative Medicine 23, 642–648.
Barriers to advance care planning in chronic obstructive pulmonary disease.Crossref | GoogleScholarGoogle Scholar | 19648222PubMed |

Groot MM, Vernooij-Dassen MJ, Crul BJP, Grol RP (2005) General practitioners (GPs) and palliative care: perceived tasks and barriers in daily practice. Palliative Medicine 19, 111–118.
General practitioners (GPs) and palliative care: perceived tasks and barriers in daily practice.Crossref | GoogleScholarGoogle Scholar | 15810749PubMed |

Houben CHM, Spruit MA, Groenen MTJ, Wouters EFM, Janssen DJA (2014) Efficacy of advance care planning: a systematic review and meta-analysis. Journal of the American Medical Directors Association 15, 477–489.
Efficacy of advance care planning: a systematic review and meta-analysis.Crossref | GoogleScholarGoogle Scholar | 24598477PubMed |

Lund S, Richardson A, May C (2015) Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies. PLoS One 10, e0116629
Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies.Crossref | GoogleScholarGoogle Scholar | 26379126PubMed |

Morse JM (2015) ‘Data were saturated…’. Qualitative Health Research 25, 587–588.
‘Data were saturated…’.Crossref | GoogleScholarGoogle Scholar | 25829508PubMed |

Reynolds KS, Hanson LC, Henderson M, Steinhauser KE (2008) End-of-life care in nursing home settings: do race or age matter? Palliative & Supportive Care 6, 21–27.
End-of-life care in nursing home settings: do race or age matter?Crossref | GoogleScholarGoogle Scholar |

Seymour JE, Almack K, Kennedy S, Froggatt K (2013) Peer education for advance care planning: volunteers’ perspectives on training and community engagement activities. Health Expectations 16, 43–55.
Peer education for advance care planning: volunteers’ perspectives on training and community engagement activities.Crossref | GoogleScholarGoogle Scholar | 21615641PubMed |

Sinclair C, Auret KA, Evans SF, Williamson F, Dormer S, Wilkinson A, Greeve K, Koay A, Price D, Brims F (2017) Advance care planning uptake among patients with severe lung disease: a randomised patient preference trial of a nurse-led, facilitated advance care planning intervention. BMJ Open 7, e013415
Advance care planning uptake among patients with severe lung disease: a randomised patient preference trial of a nurse-led, facilitated advance care planning intervention.Crossref | GoogleScholarGoogle Scholar | 29101142PubMed |

Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, Matlock DD, Rietjens JAC, Korfage IJ, Ritchie CS, Kutner JS, Teno JM, Thomas J, McMahan RD, Heyland DK, Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, Matlock DD, Rietjens JAC, Korfage IJ, Ritchie CS, Kutner JS, Teno JM, Thomas J, McMahan RD, Heyland DK (2017) Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. Journal of Pain and Symptom Management 53, 821–832.e1.
Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel.Crossref | GoogleScholarGoogle Scholar | 28062339PubMed |

The Gold Standards Framework Centre in End of Life Care CIC (2011) The GSF prognostic indicator guidance (4th edition). Available at http://www.goldstandardsframework.org.uk/cd-content/uploads/files/General%20Files/Prognostic%20Indicator%20Guidance%20October%202011.pdf [Verified 14 July 2014]

Wagner GJ, Riopelle D, Steckart J, Lorenz KA, Rosenfeld KE (2010) Provider communication and patient understanding of life-limiting illness and their relationship to patient communication of treatment preferences. Journal of Pain and Symptom Management 39, 527–534.
Provider communication and patient understanding of life-limiting illness and their relationship to patient communication of treatment preferences.Crossref | GoogleScholarGoogle Scholar | 20171827PubMed |