Coproducing Aboriginal patient journey mapping tools for improved quality and coordination of careJanet Kelly A B C , Judith Dwyer A , Tamara Mackean A , Kim O’Donnell A and Eileen Willis A
A Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide 5001, Australia.
B Adelaide Nursing School, University of Adelaide, Adelaide, SA 5006, Australia.
C Corresponding author. Email: firstname.lastname@example.org
Australian Journal of Primary Health - https://doi.org/10.1071/PY16069
Submitted: 31 May 2016 Accepted: 7 October 2016 Published online: 8 December 2016
This paper describes the rationale and process for developing a set of Aboriginal patient journey mapping tools with Aboriginal patients, health professionals, support workers, educators and researchers in the Managing Two Worlds Together project between 2008 and 2015. Aboriginal patients and their families from rural and remote areas, and healthcare providers in urban, rural and remote settings, shared their perceptions of the barriers and enablers to quality care in interviews and focus groups, and individual patient journey case studies were documented. Data were thematically analysed. In the absence of suitable existing tools, a new analytical framework and mapping approach was developed. The utility of the tools in other settings was then tested with health professionals, and the tools were further modified for use in quality improvement in health and education settings in South Australia and the Northern Territory. A central set of patient journey mapping tools with flexible adaptations, a workbook, and five sets of case studies describing how staff adapted and used the tools at different sites are available for wider use.
Additional keywords: Aboriginal health services, action research, continuity of patient care, hospitals, patient-centred care, rural health.
ReferencesAtkinson J (2002) ‘Trauma Trails, Recreating Song Lines: the Transgenerational Effects of Trauma in Indigenous Australia.’ (Spinifex Press: North Melbourne)
Australian Commission on Safety and Quality in Health Care (2010) Patient-centred care: improving quality and safety by focusing care on patients and consumers. ACSQHC, Canberra, ACT, Australia.
Australian Government (2013) National Aboriginal and Torres Strait Islander Health Plan 2013–2023. (Department of Health and Aging: Canberra, ACT, Australia) Available at http://www.health.gov.au/internet/main/publishing.nsf/content/B92E980680486C3BCA257BF0001BAF01/$File/health-plan.pdf [Verified 18 October 2016]
Australian Indigenous Doctors’ Association and Centre for Health Equity Training Research and Evaluation (2010) Health impact assessment of the Northern Territory emergency response. (Australian Indigenous Doctors’ Association Ltd, Canberra, ACT, Australia) Available at https://www.aida.org.au/wp-content/uploads/2015/03/AIDA_HIA.pdf [Verified 18 October 2016]
Ben-Tovim DI, Dougherty M, O’Connell T, McGrath K (2008a) Patient journeys: the process of clinical redesign. The Medical Journal of Australia 188, S14–S17.
Ben-Tovim DI, Bassham JE, Bennett DM, Dougherty ML, Martin MA, O’Neill SJ, Sincock JL, Szwarcbord MG (2008b) Redesigning care at the Flinders Medical Centre: clinical process redesign using ‘lean thinking’. The Medical Journal of Australia 188, S27–S31.
Browne AJ, Smye V (2002) A post-colonial analysis of healthcare discourses addressing Aboriginal women. Nurse Researcher 9, 28–41.
| A post-colonial analysis of healthcare discourses addressing Aboriginal women.CrossRef |
Dwyer J, Kelly J, Willis E, Glover J, Mackean T, Pekarsky B, Battersby M (2011) Managing Two Worlds Together: city hospital care for country Aboriginal people – Project Report. (The Lowitja Institute: Melbourne, Vic., Australia) Available at https://www.flinders.edu.au/medicine/fms/sites/health_care_management/mtwt/documents/Project%20Report_WEB.pdf [Verified 24 November 2016]
Dwyer J, Willis E, Kelly J (2014) Hospitals caring for rural Aboriginal patients: holding response and denial. Australian Health Review 38, 546–551.
Emden C (1998) Conducting a narrative analysis. Collegian (Royal College of Nursing, Australia) 5, 34–39.
| Conducting a narrative analysis.CrossRef | 1:STN:280:DyaK1M7gsVKlsA%3D%3D&md5=957e915262f9d82b501c22d245245a49CAS |
Kelly J (2009) Moving Forward Together in Aboriginal Women’s Health. PhD thesis. Flinders University, Adelaide, SA, Australia.
Kelly J, Medway P, Miller D, Catt L, Lawrence M (2015a) Managing Two Worlds Together: stage 3: improving Aboriginal patient journeys – maternity case studies. The Lowitja Institute, Melbourne, Vic., Australia. Available at http://www.flinders.edu.au/medicine/fms/sites/health_care_management/mtwt/documents/M2WT-CaseStudy-Maternity-WEB_b.pdf [Verified 24 November 2016]
Kelly J, Wiseman J, Mazzone S, Miller D, Newham J, Ryan B, Thomas K, Martinez M (2015b) Managing Two Worlds Together: stage 3: improving Aboriginal patient journeys: rural and remote sites case studies. (Lowitja Institute: Melbourne, Vic., Australia) Available at http://www.flinders.edu.au/medicine/fms/sites/health_care_management/mtwt/documents/M2WT-CaseStudy-Rural-WEB_b.pdf [Verified 24 November 2016]
Kelly J, Wilden C, Herman K, Martin G, Russell C, Brown S (2016) Bottling knowledge and sharing it –using patient journey mapping to build evidence and improve Aboriginal renal patient care. The Renal Society of Australasia Journal 12, 48–55.
Lawrence M, Dodd Z, Mohor S, Dunn S, de Crespigny C, Power C, Mackean L (2009) Improving the patient journey. Cooperative Research Centre for Aboriginal Health, Darwin, NT, Australia.
O’Donnell K, Kelly J (2011) Using Gamma knowledge sharing as a decolonising approach to conference planning and facilitation. Action Learning and Action Research Journal 17, 137–156.
Richardson S, Casey M, Hider P (2007) Following the patient journey: older person’s experiences of emergency departments and discharge. Accident and Emergency Nursing 15, 134–140.
| Following the patient journey: older person’s experiences of emergency departments and discharge.CrossRef |
Rolley JX, Davidson P, Salamonson Y, Fernandez R, Dennison C (2009) Review of nursing care for patients undergoing percutaneous coronary intervention: a patient journey approach. Journal of Clinical Nursing 18, 2394–2405.
| Review of nursing care for patients undergoing percutaneous coronary intervention: a patient journey approach.CrossRef |
Stringer E (2007) ‘Action Research.’ (Sage: Thousand Oaks, CA, USA)
Wagner EH (1998) Chronic disease management: what will it take to improve care for chronic illness? Effective Clinical Practice 1, 2–4.
Willis J, Wilson G, Renhard R, Chong A, Clarke A (2010) Improving the culture of hospitals. (Australian Institute for Primary Care, Latrobe University) Available at http://www.lowitja.org.au/sites/default/files/docs/ICHP_Final_Report_August_2010.pdf [Verified 24 November 2016]