Register      Login
Journal of Primary Health Care Journal of Primary Health Care Society
Journal of The Royal New Zealand College of General Practitioners
RESEARCH ARTICLE (Open Access)

General practice and patients’ views of the social networks of patients with multimorbidity

Eileen McKinlay 1 , Jessica Young 2 , Ben Gray 2
+ Author Affiliations
- Author Affiliations

1 Department of Primary Health Care and General Practice, University of Otago, Wellington, New Zealand

2 Department of General Practice and Rural Health, University of Otago, New Zealand

Correspondence to: Eileen McKinlay, Department of Primary Health Care and General Practice, University of Otago, Wellington 6242, New Zealand. Email: eileen.mckinlay@otago.ac.nz

Journal of Primary Health Care 10(3) 258-266 https://doi.org/10.1071/HC17050
Published: 13 July 2018

Journal Compilation © Royal New Zealand College of General Practitioners 2018.
This is an open access article licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Abstract

INTRODUCTION: For patients with multimorbidity to live well, they need the support of not only health professionals but family, friends and organisations. These social networks provide support, potentially enabling the formation of a Community of Clinical Practice approach to multimorbidity care.

AIM: This study aimed to explore general practice knowledge of the social networks of patients with multimorbidity.

METHODS: Social network maps were completed by both patients and general practice. The social network maps of 22 patients with multimorbidity were compared with corresponding social network maps completed by general practice staff.

RESULTS: In 60% (13/22) of the patients, general practice staff held a high or moderate knowledge of individual patients’ social networks. Information on social networks was recalled from staff memory and not systematically recorded in patients’ electronic health records.

DISCUSSION: Social network information is not routinely collected, recorded or used by general practice to understand the support available to patients with multimorbidity. General practice could take an active role in coordinating social network supporters for certain patient groups with complex multimorbidity. For these groups, there is value in systematically recording and regularly updating their social network information for general practice to use as part of a coordinated Community of Clinical Practice.

KEYWORDS: Communities of clinical practice; general practice; multimorbidity; patients; social networks


References

[1]  Huber M, van Vliet M, Giezenberg M, et al. Towards a ‘patient-centred’ operationalisation of the new dynamic concept of health: a mixed methods study. BMJ Open. 2016; 6 e010091
Towards a ‘patient-centred’ operationalisation of the new dynamic concept of health: a mixed methods study.Crossref | GoogleScholarGoogle Scholar |

[2]  Le Reste JY, Nabbe P, Rivet C, et al. The European general practice research network presents the translations of its comprehensive definition of multi-morbidity in family medicine in ten European languages. PLoS One. 2015; 10 e0115796
The European general practice research network presents the translations of its comprehensive definition of multi-morbidity in family medicine in ten European languages.Crossref | GoogleScholarGoogle Scholar |

[3]  Ridgeway JL, Egginton JS, Tiedje K, et al. Factors that lessen the burden of treatment in complex patients with chronic conditions: A qualitative study. Patient Prefer Adherence. 2014; 8 339–51.
Factors that lessen the burden of treatment in complex patients with chronic conditions: A qualitative study.Crossref | GoogleScholarGoogle Scholar |

[4]  Roland M, Paddison C. Better management of patients with multi-morbidity. BMJ. 2013; 346
Better management of patients with multi-morbidity.Crossref | GoogleScholarGoogle Scholar |

[5]  Hujala A, Laulainen S, Lindberg K, et al. People with multi-morbidity: forgotten outsiders or dynamic self-managers? J Health Organ Manag. 2014; 28 696–712.
People with multi-morbidity: forgotten outsiders or dynamic self-managers?Crossref | GoogleScholarGoogle Scholar |

[6]  Signal L, Semper K, Stairmand J, et al. A walking stick in one hand and a chainsaw in the other: patients’ perspectives of living with multi-morbidity. N Z Med J. 2017; 130 65–76.

[7]  Wagner EH, Austin BT, Von Korff M. Improving outcomes in chronic illness. Manag Care Q. 1996; 4 12–25.

[8]  Vassilev I, Rogers A, Kennedy A, Koetsenruijter J. The influence of social networks on self-management support: a metasynthesis. BMC Public Health. 2014; 14 719.

[9]  Reeves D, Blickem C, Vassilev I, et al. The contribution of social networks to the health and self-management of patients with long-term conditions: a longitudinal study. PLoS One. 2014; 9 e98340
The contribution of social networks to the health and self-management of patients with long-term conditions: a longitudinal study.Crossref | GoogleScholarGoogle Scholar |

[10]  Bergland A, Meaas I, Debesay J, et al. Associations of social networks with quality of life, health and physical functioning. Eur J Physiother. 2016; 18 78–88.
Associations of social networks with quality of life, health and physical functioning.Crossref | GoogleScholarGoogle Scholar |

[11]  Soubhi H, Bayliss EA, Fortin M, et al. Learning and caring in communities of practice: using relationships and collective learning to improve primary care for patients with multi-morbidity. Ann Fam Med. 2010; 8 170–7.
Learning and caring in communities of practice: using relationships and collective learning to improve primary care for patients with multi-morbidity.Crossref | GoogleScholarGoogle Scholar |

[12]  Vassilev I, Rogers A, Blickem C, et al. Social networks, the ‘work’ and work force of chronic illness self-management: a survey analysis of personal communities. PLoS One. 2013; 8 e59723
Social networks, the ‘work’ and work force of chronic illness self-management: a survey analysis of personal communities.Crossref | GoogleScholarGoogle Scholar |

[13]  Morris RL, Kennedy A, Sanders C. Evolving ‘self’-management: exploring the role of social network typologies on individual long-term condition management. Health Expect. 2016; 19 1044–61.
Evolving ‘self’-management: exploring the role of social network typologies on individual long-term condition management.Crossref | GoogleScholarGoogle Scholar |

[14]  Dwarswaard J, Bakker E, van Staa A, Boeije HR. Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies. Health Expect. 2016; 19 194–208.
Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies.Crossref | GoogleScholarGoogle Scholar |

[15]  Wallace E, Salisbury C, Guthrie B, et al. Managing patients with multi-morbidity in primary care. BMJ. 2015; 350 h176
Managing patients with multi-morbidity in primary care.Crossref | GoogleScholarGoogle Scholar |

[16]  Rogers A, Vassilev I, Brooks H, et al. Brief encounters: what do primary care professionals contribute to peoples’ self-care support network for long-term conditions? A mixed methods study. BMC Fam Pract. 2016; 17 21
Brief encounters: what do primary care professionals contribute to peoples’ self-care support network for long-term conditions? A mixed methods study.Crossref | GoogleScholarGoogle Scholar |

[17]  Rogers A, Vassilev I, Sanders C, et al. Social networks, work and network-based resources for the management of long-term conditions: a framework and study protocol for developing self-care support. Implement Sci. 2011; 6 56
Social networks, work and network-based resources for the management of long-term conditions: a framework and study protocol for developing self-care support.Crossref | GoogleScholarGoogle Scholar |

[18]  McKinlay E, McDonald J, Darlow B, Perry M. Social networks of patients with multimorbidity: a qualitative study of patients’ and supporters’ views. J Prim Health Care. 2017; 9 153–61.

[19]  Egan T, Jaye C. Communities of clinical practice: the social organization of clinical learning. Health. 2009; 13 107–25.
Communities of clinical practice: the social organization of clinical learning.Crossref | GoogleScholarGoogle Scholar |

[20]  Jaye C, Egan T. Communities of clinical practice: implications for health professional education. FoHPE. 2006; 8 1–10.

[21]  Young J, Jaye C, Egan T, et al. Communities of clinical practice in action: Doing whatever it takes. Health. 2018; 22 109–27.
Communities of clinical practice in action: Doing whatever it takes.Crossref | GoogleScholarGoogle Scholar |

[22]  Fortin M, Lapointe L, Hudon C, et al. Multi-morbidity and quality of life in primary care: a systematic review. Health Qual Life Outcomes. 2004; 2 51.

[23]  Mercer SW, Smith SM, Wyke S, et al. Multi-morbidity in primary care: developing the research agenda. Fam Pract. 2009; 26 79–80.
Multi-morbidity in primary care: developing the research agenda.Crossref | GoogleScholarGoogle Scholar |

[24]  Salisbury C. Multi-morbidity: redesigning health care for people who use it. Lancet. 2012; 380 7–9.
Multi-morbidity: redesigning health care for people who use it.Crossref | GoogleScholarGoogle Scholar |

[25]  Sinnott C, Mc Hugh S, Browne J, Bradley C. GPs’ perspectives on the management of patients with multi-morbidity: systematic review and synthesis of qualitative research. BMJ Open. 2013; 3 e003610
GPs’ perspectives on the management of patients with multi-morbidity: systematic review and synthesis of qualitative research.Crossref | GoogleScholarGoogle Scholar |

[26]  Aspin C, Jowsey T, Glasgow N, et al. Health policy responses to rising rates of multi-morbid chronic illness in Australia and New Zealand. Aust N Z J Public Health. 2010; 34 386–93.
Health policy responses to rising rates of multi-morbid chronic illness in Australia and New Zealand.Crossref | GoogleScholarGoogle Scholar |

[27]  Mjølstad BP, Kirkengen AL, Getz L, Hetlevik I. What do GPs actually know about their patients as persons? Eur J Pers Cent Healthc. 2013; 1 149–60.
What do GPs actually know about their patients as persons?Crossref | GoogleScholarGoogle Scholar |

[28]  Wenger GC, Tucker I. Using network variation in practice: identification of support network type. Health Soc Care Community. 2002; 10 28–35.
Using network variation in practice: identification of support network type.Crossref | GoogleScholarGoogle Scholar |

[29]  Wenger E. Communities of Practice, Learning, Meaning and Identity. Cambridge, UK: Cambridge University Press; 1998.

[30]  Young J, Egan T, Williamson M, et al. An exercise to map patient-centred care networks. Clin Teach. 2016; 13 448–50.
An exercise to map patient-centred care networks.Crossref | GoogleScholarGoogle Scholar |

[31]  Wenger-Trayner E, Wenger-Trayner B. Social Learning: levels of participation. 2015. (cited 2018 June 18) Available from: http://wenger-trayner.com/project/levels-of-participation/

[32]  Valderas JM, Mercer SW, Fortin M. Research on patients with multiple health conditions: different constructs, different views, one voice. J Comorb. 2011; 1 1–3.
Research on patients with multiple health conditions: different constructs, different views, one voice.Crossref | GoogleScholarGoogle Scholar |

[33]  Bower P, Macdonald W, Harkness E, et al. Multi-morbidity, service organization and clinical decision making in primary care: a qualitative study. Fam Pract. 2011; 28 579–87.
Multi-morbidity, service organization and clinical decision making in primary care: a qualitative study.Crossref | GoogleScholarGoogle Scholar |

[34]  Ministry of Health. CarePlus. City: Ministry of Health; 2016. (cited 2016 September 25) Available from: http://www.health.govt.nz/our-work/primary-health-care/primary-health-care-subsidies-and-services/care-plus.

[35]  Ernst & Young. Health Care Home evaluation - updated analysis, April-September 2017. Auckland: Ernst & Young; 2018.

[36]  McKinlay E, McBain L, Gray B. Teaching and learning about chronic conditions management for undergraduate medical students: utilizing the patient-as-teacher approach. Chronic Illn. 2009; 5 209–18.
Teaching and learning about chronic conditions management for undergraduate medical students: utilizing the patient-as-teacher approach.Crossref | GoogleScholarGoogle Scholar |

[37]  Crabtree BF, Miller WL. Doing Qualitative Research. London: Sage Publications; 1999.

[38]  Barnett K, Mercer SW, Norbury M, et al. Epidemiology of multi-morbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet 2012; 380 37–43.
Epidemiology of multi-morbidity and implications for health care, research, and medical education: a cross-sectional study.Crossref | GoogleScholarGoogle Scholar |

[39]  Thirsk LM, Clark AM. What is the ‘self’ in chronic disease self-management? Int J Nurs Stud. 2014; 51 691–3.
What is the ‘self’ in chronic disease self-management?Crossref | GoogleScholarGoogle Scholar |

[40]  Iosifyan M, Arina G, Flahault C. Values, coping strategies, and psychopathological symptoms among adolescents with asthma: a cross-cultural study. J Cross Cult Psychol. 2016; 47 680–95.
Values, coping strategies, and psychopathological symptoms among adolescents with asthma: a cross-cultural study.Crossref | GoogleScholarGoogle Scholar |

[41]  Duke NN, Azzahir A. Creating culturally relevant and responsive health care models. J Comm Engage Higher Educ. 2016; 8 53–65.

[42]  Oetzel J, Simpson M, Berryman K, Iti T, Reddy R. Managing communication tensions and challenges during the end-of-life journey: perspectives of Māori kaumatua and their whanau. Health Commun. 2015; 30 350–60.
Managing communication tensions and challenges during the end-of-life journey: perspectives of Māori kaumatua and their whanau.Crossref | GoogleScholarGoogle Scholar |

[43]  Kennedy V. Ecomaps. MAI Review. 2013; 3 1–12.

[44]  Blickem C, Kennedy A, Jariwala P, et al. Aligning everyday life priorities with people’s self-management support networks: an exploration of the work and implementation of a needs-led telephone support system. BMC Health Serv Res. 2014; 14 262
Aligning everyday life priorities with people’s self-management support networks: an exploration of the work and implementation of a needs-led telephone support system.Crossref | GoogleScholarGoogle Scholar |

[45]  Jeffries M, Mathieson A, Kennedy A, et al. Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions. Health Soc Care Community. 2015; 23 252–61.
Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions.Crossref | GoogleScholarGoogle Scholar |

[46]  Morris R, Kirk S, Kennedy A, et al. Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management. Chronic Illn. 2015; 11 140–55.
Connecting local support: a qualitative study exploring the role of voluntary organisations in long-term condition management.Crossref | GoogleScholarGoogle Scholar |

[47]  Kemper-Koebrugge W, Koetsenruijter J, Rogers A, et al. Local networks of community and healthcare organisations: a mixed methods study. BMC Res Notes. 2016; 9 331
Local networks of community and healthcare organisations: a mixed methods study.Crossref | GoogleScholarGoogle Scholar |

[48]  Boyle FM, Dean JH, Young CE, Mutch AJ. Why do people with chronic disease not contact consumer health organisations? A survey of general practice patients. Prim Health Care Res Dev. 2016; 17 393–404.
Why do people with chronic disease not contact consumer health organisations? A survey of general practice patients.Crossref | GoogleScholarGoogle Scholar |