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Journal of the Australasian Society for the Study of Brain Impairment
RESEARCH ARTICLE (Open Access)

Associations between participation and personal factors in community-dwelling adults post-stroke

Melanie Hoyle https://orcid.org/0000-0002-8982-190X A * , Pamela Meredith https://orcid.org/0000-0002-2981-9189 A B , Tamara Ownsworth https://orcid.org/0000-0003-1835-7094 C D , Asaduzzaman Khan https://orcid.org/0000-0003-4188-2065 A and Louise Gustafsson https://orcid.org/0000-0001-5232-0987 A D E
+ Author Affiliations
- Author Affiliations

A School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia

B School of Health and Behavioural Sciences, University of the Sunshine Coast, Sippy Downs, Australia

C School of Applied Psychology, Griffith University, Brisbane, Australia

D Menzies Health Institute Queensland, Griffith University, Brisbane, Australia

E School of Health Sciences and Social Work, Griffith University, Brisbane, Australia

* Correspondence to: m.hoyle@uq.edu.au

Brain Impairment 24(3) 456-473 https://doi.org/10.1017/BrImp.2022.31
Submitted: 11 June 2021  Accepted: 9 October 2022  Published: 20 December 2022

© The Author(s), 2022. Published by Cambridge University Press on behalf of Australasian Society for the Study of Brain Impairment. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Purpose:

To examine associations between post-stroke participation and personal factors, including demographic characteristics, self- and threat appraisals, and personality variables.

Methods:

An exploratory cross-sectional study with purpose-designed survey was completed online or via mail. The survey was comprised of demographic and health-related questions and multiple questionnaires, including the Stroke Impact Scale Version 3.0 (SISv3) (participation/perceived recovery), Community Integration Questionnaire (CIQ) (participation), Head Injury Semantic Differential III (pre- vs post-stroke self-concept/self-discrepancy), Appraisal of Threat and Avoidance Questionnaire (threat appraisal), Life Orientation Test – Revised (optimism) and Relationships Questionnaire (adult attachment style) that measured variables of interest. Sixty-two participants, aged 24–96 years who had experienced a stroke (one or multiple events) and had returned to community living, completed the survey. Associations were examined using correlations, and univariate and multiple linear regression analyses.

Results:

Regression analysis showed that greater participation, measured using the CIQ, was associated with younger age, female gender, lower self-discrepancy and higher perceived recovery, explaining 69% of the variability in CIQ participation. Further, greater participation on the SISv3 was associated with lower self-discrepancy and higher perceived recovery, explaining 64% of the variability in SISv3 participation.

Conclusions:

Results indicate that personal factors, particularly self-appraisals like self-concept/self-discrepancy, in combination with perceived recovery may be important in explaining a large portion of variance in post-stroke participation. Specifically, findings highlight the interrelatedness of self-concept change, perceived recovery and post-stroke participation. Further longitudinal research is needed to clarify the directionality of these associations throughout the hospital-to-home transition.

Keywords: cerebrovascular accident, community, participation, personal factors, recovery, self-concept, stroke.

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