Experiences of adults with stroke attending a peer-led peer-support group

Carmen May; Katlyn Bieber; Debbie Chow; W. Ben Mortenson; Julia Schmidt

doi:10.1071/IB23051

RESEARCH ARTICLE (Open Access)

Next Contents Vol 24(3)

Experiences of adults with stroke attending a peer-led peer-support group

Carmen May ^A , Katlyn Bieber ^A , Debbie Chow ^B , W. Ben Mortenson ^A ^C ^D and Julia Schmidt

^A ^C ^*

+ Author Affiliations

- Author Affiliations

^A Department of Occupational Science & Occupational Therapy, Faculty of Medicine, University of British Columbia, BC, Canada

^B Building Life After Stroke Together (BLAST), Vancouver, BC, Canada

^C G.F. Strong Rehabilitation Research Program, Vancouver, BC, Canada

^D International Collaboration on Repair Discoveries

^* Correspondence to: julia.schmidt@ubc.ca

Brain Impairment 24(3) 443-455 https://doi.org/10.1017/BrImp.2023.3

Submitted: 1 March 2022 Accepted: 16 January 2023 Published: 15 February 2023

© The Author(s), 2023. Published by Cambridge University Press on behalf of Australasian Society for the Study of Brain Impairment. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Purpose:

Peer-support groups for stroke survivors are often organized and facilitated by health authorities and disability related organizations within rehabilitation programs. However, the benefits of peer-led, peer-support groups have not yet been evaluated. The purpose of this study was to explore participants’ experiences in a community-based, peer-led, peer-support group for stroke survivors.

Materials and Methods:

Semi-structured interviews were conducted and analyzed following constructivist grounded theory with 11 participants who attended a peer-led, peer-support group for people with stroke. The data were also complemented with one quantitative rating question regarding their experience attending the group.

Results:

Three themes were identified. Meeting unmet needs after stroke captured how the group was created by stroke survivors to address life in the community post-stroke. Buddies helping buddies highlighted that stroke recovery is a shared process at the group, where members help and encourage each other to contribute what they can. Creating authentic friendships revealed how people experienced social connection and developed relationships in the peer-led, peer-support group.

Conclusions:

Peer-led, peer-support groups may provide opportunities for stroke survivors to connect with like-minded people in their community to have fun while exploring their abilities.

Keywords: Peer-led, peer-support, stroke support group, stroke, community programs post-stroke.

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