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Journal of the Australasian Society for the Study of Brain Impairment
REVIEW

The many faces of stigma after Acquired Brain Injury: a systematic review

María-José Bracho https://orcid.org/0000-0003-0521-9055 A * and Christian Salas https://orcid.org/0000-0001-7700-1341 A B
+ Author Affiliations
- Author Affiliations

A Centro de Estudios en Neurociencia Humana y Neuropsicología, Universidad Diego Portales, Vergara 275, Santiago, Chile.

B Unidad de Neuropsicología Clínica, Universidad Diego Portales, Vergara 275, Santiago, Chile.

* Correspondence to: mjbrachop@gmail.com

Handling Editor: Grahame Simpson

Brain Impairment 25, IB23076 https://doi.org/10.1071/IB23076
Submitted: 17 August 2023  Accepted: 17 September 2023  Published: 19 January 2024

© 2024 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of the Australasian Society for the Study of Brain Impairment.

Abstract

Background

Stigma after Acquired Brain Injury (ABI) has been described as a significant obstacle for the recovery of survivors. Despite its theoretical and clinical relevance, studies dedicated to stigma after ABI are just starting to emerge. The goal of this systematic review was to integrate the existing scientific evidence and develop a model of stigma after brain injury that can guide interventions at different levels.

Method

Three electronic databases were employed. A search strategy was adapted for each database. Articles that explored stigma in adult ABI populations were included. All articles used quantitative, qualitative or mixed method designs and were published in English, Spanish or Portuguese.

Results

A total of 21 articles were selected. They considered three types of stigma after ABI: (1) self-stigma, (2) stigma-by-association and (3) public stigma. It was also found that information can be processed at implicit and explicit levels across all three forms of stigma. Definitions of each type of stigma used with ABIs are provided as well as related concepts and theoretical frameworks employed. Evidence emerging from different forms of stigma after ABI is summarised.

Conclusion

Research on stigma after ABI is heterogeneous, and existing studies have explored its impact at individual, family and public levels. A model of stigma after ABI should consider all these levels as well as the interactions that can occur between them. Future studies should explore how to incorporate stigma management as part of neuropsychological rehabilitation programs.

Keywords: anticipated stigma, discrimination, implicit and explicit stigma, prejudices, public stigma, self-stigma, stereotypes, stigma-by-association.

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