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Improving services for patients with Disorders of Consciousness (DoC) post acquired brain injury: Evaluation of family and staff education packages in a Neurosciences Unit

Erin Kelly , Maeve O'Neill, Emma Finch , Anna O'Gorman

Abstract

Background: International guidelines recommend a specialised, multidisciplinary approach to optimise outcomes post disorders of consciousness (DoC), with family education the cornerstone of management. Despite this, multidisciplinary staff report reduced confidence and skill in the management of patients with DoC and education provision to families is inconsistent. This study aimed to evaluate the effectiveness of DoC education packages in enhancing self-perceived knowledge, confidence and skill of staff and families surrounding acute DoC management. Method: Standardised education packages were developed and delivered to: 1. Neurosciences staff, and 2. families of patients with DoC. Pre- and post-education surveys were used to measure family and staff self-perceived knowledge, confidence and skill in management of patients with DoC. Non-parametric statistics were utilised to analyse the quantitative data, while thematic analysis was used to analyse open-ended responses. Results: 26 family members and 86 health professionals were recruited. There was a statistically significant improvement across all areas of self-perceived knowledge, confidence, and skill post introduction of the education packages (all p <.05), with the packages perceived as beneficial. Thematic analysis identified six themes and twelve subthemes. Conclusions: DoC family and staff education packages can enhance family and staff self-perceived knowledge, confidence, and skill surrounding management of patients with DoC.

IB24118  Accepted 19 August 2025

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