Register      Login
Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH FRONT (Open Access)

Implementing national mental health carer partnership standards in South Australia

Sharon Lawn A E , Elaine Waddell https://orcid.org/0000-0002-6336-1087 A , Taryn Cowain B , Carol Turnbull C and Janne McMahon D
+ Author Affiliations
- Author Affiliations

A Behavioural Health, Room 2.11, Health Science Building, College of Medicine and Public Health, Flinders University, Sturt Road, Bedford Park, SA 5042, Australia. Email: elaine.waddell@flinders.edu.au

B Jamie Larcombe Centre, Eucalyptus Road, Glenside, SA 5065, Australia. Email: taryn.cowain@sa.gov.au

C Ramsay Health Care SA Mental Health Services, Adelaide Clinic, 33 Park Terrace, Gilberton, SA 5081, Australia. Email: turnbullc@ramsayhealth.com.au

D Lived Experience Australia (formerly Private Mental Health Consumer Carer Network (Australia)), PO Box 542, Marden, SA 5070, Australia. Email: jmcmahon@livedexperienceaustralia.com.au

E Corresponding author. Email: sharon.lawn@flinders.edu.au

Australian Health Review 44(6) 880-890 https://doi.org/10.1071/AH19156
Submitted: 2 July 2019  Accepted: 14 February 2020   Published: 5 August 2020

Journal Compilation © AHHA 2020 Open Access CC BY-NC-ND

Abstract

Objective The aim of this study was to describe the current state of carer engagement and partnership in two mental health (MH) services in South Australia and the implementation of the six partnership standards in A Practical Guide to Working with Carers of People with a Mental Illness.

Methods Anonymous surveys of carer experiences and clinician self-ratings of their own practice against the six partnership standards were completed by 94 staff and 58 carers within public and private MH in-patient units before and after exposure of clinicians to education about the partnership standards. Descriptive statistical analysis was performed and, where applicable, a comparative analysis used the two-sample Z-test of proportions. Qualitative data was analysed thematically.

Results Considerable gaps were evident between carer experiences and clinician self-ratings of their own practice. Overall, the surveys point to the lack of a consistent approach by both public and private services, and suggest potential barriers to fostering carer participation and engagement. Confidentiality was a particularly noted barrier to partnership with carers.

Conclusion Significant improvement is needed to meet the partnership standards. Brief exposure to the Guide is not, in itself, sufficient to effect change in the overall attitudes, skills and knowledge of clinical staff about engaging carers. Significantly more focus on staff education, clinical discussions and supervision is needed to meet the MH carer partnership standards.

What is known about the topic? Partnership with MH consumers and carers is an established key principle within national MH policies and accreditation standards. Family carers play an important role in supporting consumers’ recovery, yet many carers continue to report being excluded, particularly by in-patient clinical staff.

What does this paper add? This is the first study to investigate the partnership standards in practice by comparing the perspectives of carers and in-patient MH clinical staff.

What are the implications for practitioners? Improving partnership with carers of people with mental illness will require significant MH service leadership support shifts in current practice and culture. In addition, a more nuanced understanding of confidentiality is required to overcome the barriers to involving family carers more meaningfully in care.


References

[1]  Pirkis J, Burgess P, Hardy J, Harris M, Slade T, Johnston A. Who cares? A profile of people who care for relatives with a mental disorder. Aust N Z J Psychiatry 2010; 44 929–37.
Who cares? A profile of people who care for relatives with a mental disorder.Crossref | GoogleScholarGoogle Scholar | 20932207PubMed |

[2]  Topor A, Borg M, Di Girolamo S, Davidson L. Not just an individual journey: social aspects of recovery. Int J Soc Psychiatry 2011; 57 90–9.
Not just an individual journey: social aspects of recovery.Crossref | GoogleScholarGoogle Scholar | 21252359PubMed |

[3]  Cree L, Brooks HL, Berzins K, Fraser C, Lovell K, Bee P. Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services. BMC Psychiatry 2015; 15 208
Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services.Crossref | GoogleScholarGoogle Scholar | 26319602PubMed |

[4]  Lakeman R. Practice standards to improve the quality of family and carer participation in adult mental health care: an overview and evaluation. Int J Ment Health Nurs 2008; 17 44–56.
Practice standards to improve the quality of family and carer participation in adult mental health care: an overview and evaluation.Crossref | GoogleScholarGoogle Scholar | 18211403PubMed |

[5]  Australian Health Ministers. Fourth national mental health plan: an agenda for collaborative government action in mental health 2009–2014. Canberra: Commonwealth of Australia; 2009. Available at: http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-pubs-f-plan09 [verified 3 March 2019].

[6]  Council of Australian Governments. The fifth national mental health and suicide prevention plan. Canberra: Commonwealth of Australia; 2008. Available at: https://www.mentalhealthcommission.gov.au/getmedia/0209d27b-1873-4245-b6e5-49e770084b81/Fifth-National-Mental-Health-and-Suicide-Prevention-Plan.pdf [verified 10 March 2019].

[7]  Bland R, Foster M. Families and mental illness: contested perspectives and implications for practice and policy. Aust Soc Work 2012; 65 517–34.
Families and mental illness: contested perspectives and implications for practice and policy.Crossref | GoogleScholarGoogle Scholar |

[8]  Lammers J, Happell B. Mental health reforms and their impact on consumer and carer participation: a perspective from Victoria, Australia. Issues Ment Health Nurs 2004; 25 261–76.
Mental health reforms and their impact on consumer and carer participation: a perspective from Victoria, Australia.Crossref | GoogleScholarGoogle Scholar | 14965846PubMed |

[9]  Martin RM, Ridley SC, Gillieatt SJ. Family inclusion in mental health services: reality or rhetoric? Int J Soc Psychiatry 2017; 63 480–7.
Family inclusion in mental health services: reality or rhetoric?Crossref | GoogleScholarGoogle Scholar | 28653545PubMed |

[10]  Cleary M, Freeman A, Walter G. Carer participation in mental health service delivery. Int J Ment Health Nurs 2006; 15 189–94.
Carer participation in mental health service delivery.Crossref | GoogleScholarGoogle Scholar | 16916412PubMed |

[11]  Lakeman R. Family and carer participation in mental health care: perspectives of consumers and carers in hospital and home care settings. J Psychiatr Ment Health Nurs 2008; 15 203–11.
Family and carer participation in mental health care: perspectives of consumers and carers in hospital and home care settings.Crossref | GoogleScholarGoogle Scholar | 18307649PubMed |

[12]  Lawn S, McMahon J. Experiences of family carers of people diagnosed with borderline personality disorder. J Psychiatr Ment Health Nurs 2015; 22 234–43.
Experiences of family carers of people diagnosed with borderline personality disorder.Crossref | GoogleScholarGoogle Scholar | 25857849PubMed |

[13]  Wilkinson C, McAndrew S. ‘I’m not an outsider, I’m his mother!’ A phenomenological enquiry into carer experiences of exclusion from acute psychiatric settings. Int J Ment Health Nurs 2008; 17 392–401.
‘I’m not an outsider, I’m his mother!’ A phenomenological enquiry into carer experiences of exclusion from acute psychiatric settings.Crossref | GoogleScholarGoogle Scholar | 19128286PubMed |

[14]  Goodwin V, Happell B. Psychiatric nurses’ attitudes towards consumer and carer participation in care. Policy Polit Nurs Pract 2008; 9 249–56.
Psychiatric nurses’ attitudes towards consumer and carer participation in care.Crossref | GoogleScholarGoogle Scholar | 18458098PubMed |

[15]  Eassom E, Giacco D, Dirik A, Priebe S. Implementing family involvement in the treatment of patients with psychosis: a systematic review of facilitating and hindering factors. BMJ Open 2014; 4 e006108
Implementing family involvement in the treatment of patients with psychosis: a systematic review of facilitating and hindering factors.Crossref | GoogleScholarGoogle Scholar | 25280809PubMed |

[16]  Goodwin V, Happell B. Conflicting agendas between consumers and carers: the perspectives of carers and nurses. Int J Ment Health Nurs 2006; 15 135–43.
Conflicting agendas between consumers and carers: the perspectives of carers and nurses.Crossref | GoogleScholarGoogle Scholar | 16643349PubMed |

[17]  van de Bovenkamp HM, Trappenburg MJ. The relationship between mental health workers and family members. Patient Educ Couns 2010; 80 120–5.
The relationship between mental health workers and family members.Crossref | GoogleScholarGoogle Scholar | 19836188PubMed |

[18]  Australian Commission on Safety and Quality in Health Care (ACSQHC). Scoping study on the implementation of national standards in mental health services. Sydney: ACSQHC; 2014. Available at: https://www.safetyandquality.gov.au/wp-content/uploads/2014/11/Scoping-Study-on-the-Implementation-of-National-Standards-in-Mental-Health-Services.pdf [verified 10 March 2019].

[19]  Mind Australia, Helping Minds, Private Mental Health Consumer Carer Network (Australia), Mental Health Carers Arafmi Australia and Mental Health Australia. A practical guide for working with carers of people with a mental illness. Australia: Mind Australia and Helping Minds; 2016. Available at: https://mhaustralia.org/sites/default/files/docs/a_practical_guide_for_working_with_carers_of_people_with_a_mental_illness_february.pdf [verified 26 September 2018].

[20]  Australian Government. National standards for mental health services. Canberra: Australian Government; 2010. Available at: https://www.health.gov.au/internet/main/publishing.nsf/Content/CFA833CB8C1AA178CA257BF0001E7520/$File/servst10v2.pdf [verified 10 March 2019].

[21]  Australian Commission on Safety and Quality in Health Care (ACSQHC). National safety and quality health service standards. 2nd ed. Sydney: ACSQHC; 2017. Available at: https://www.safetyandquality.gov.au/wp-content/uploads/2017/12/National-Safety-and-Quality-Health-Service-Standards-second-edition.pdf [verified 15 March 2019].

[22]  Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3 77–101.
Using thematic analysis in psychology.Crossref | GoogleScholarGoogle Scholar |

[23]  Lavoie JAA. Relative invisibility: an integrative review of carers’ lived experiences of a family member’s emergency mental health crisis. Soc Work Ment Health 2018; 16 601–26.
Relative invisibility: an integrative review of carers’ lived experiences of a family member’s emergency mental health crisis.Crossref | GoogleScholarGoogle Scholar |

[24]  Olasoji M, Maude P, McCauley K. Not sick enough: experiences of carers of people with mental illness negotiating care for their relatives with mental health services. J Psychiatr Ment Health Nurs 2017; 24 403–11.
Not sick enough: experiences of carers of people with mental illness negotiating care for their relatives with mental health services.Crossref | GoogleScholarGoogle Scholar | 28499065PubMed |

[25]  Furlong MA. Constraints on family-sensitive mental health practices. J Fam Stud 2001; 7 217–31.
Constraints on family-sensitive mental health practices.Crossref | GoogleScholarGoogle Scholar |

[26]  Chan BWY, O’Brien A-M. The right of caregivers to access health information of relatives with mental illness. Int J Law Psychiatry 2011; 34 386–92.
The right of caregivers to access health information of relatives with mental illness.Crossref | GoogleScholarGoogle Scholar |

[27]  Goodwin V, Happell B. Consumer and carer participation in mental health care: the carer’s perspective: part 1 – the importance of respect and collaboration. Issues Ment Health Nurs 2007; 28 607–23.
Consumer and carer participation in mental health care: the carer’s perspective: part 1 – the importance of respect and collaboration.Crossref | GoogleScholarGoogle Scholar | 17613159PubMed |

[28]  Gall SH, Atkinson J, Elliott L, Johansen R. Supporting carers of people diagnosed with schizophrenia: evaluating change in nursing practice following training. J Adv Nurs 2003; 41 295–305.
Supporting carers of people diagnosed with schizophrenia: evaluating change in nursing practice following training.Crossref | GoogleScholarGoogle Scholar | 12581117PubMed |

[29]  Cleary M, Freeman A. Enhancing nurse carer partnerships: a self-directed learning approach. Nurse Educ Pract 2006; 6 224–31.
Enhancing nurse carer partnerships: a self-directed learning approach.Crossref | GoogleScholarGoogle Scholar | 19040881PubMed |