Register      Login
Journal of Primary Health Care Journal of Primary Health Care Society
Journal of The Royal New Zealand College of General Practitioners
RESEARCH ARTICLE (Open Access)

Iwi (tribal) data collection at a primary health care organisation in Aotearoa

James (Hemi) Enright 1 , Anneka Anderson 2 , Rawiri McKree Jansen 3 , Jonathan Murray 4 , Karen Brewer 5 , Vanessa Selak 6 , Matire Harwood 7 8
+ Author Affiliations
- Author Affiliations

1 Whangarei Hospital, Northland District Health Board, New Zealand

2 Te Kupenga Hauora Māori, FMHS, University of Auckland, New Zealand

3 Clinical Director, National Hauora Coalition PHO, New Zealand

4 Primary Health Networks, National Hauora Coalition PHO, Auckland, New Zealand

5 Psychology (Speech Science), Faculty of Science, University of Auckland, New Zealand

6 School of Population Health, FMHS, University of Auckland, New Zealand

7 Department of General Practice and Primary Care, Grafton, FMHS, University of Auckland, New Zealand

8 Corresponding author. Email: m.harwood@auckland.ac.nz

Journal of Primary Health Care 13(1) 36-43 https://doi.org/10.1071/HC20037
Published: 15 March 2021

Journal Compilation © Royal New Zealand College of General Practitioners 2021 This is an open access article licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License

Abstract

INTRODUCTION: Indigenous peoples’ rights include the right to self-determine one’s identity. For Māori, this includes self-assignment of ethnicity, and traditional identities such as Iwi (tribe). New Zealand’s Ministry of Health requires health services to collect ethnicity data using standard protocols. Iwi data are also collected by some health services; however, with no health-specific protocols, little is known about Iwi data collection and quality. The National Hauora Coalition (NHC) Primary Healthcare Organisation (PHO) sought to understand Iwi data collection across its network of primary care providers.

AIM: To understand Iwi data collection at the NHC PHO; specifically, is it being routinely collected, how is it being collected and what are the results?

METHODS: In 2017, NHC’s general practice clinics were invited to submit their enrolment forms, which capture ethnicity and potentially Iwi information, by e-mail to the audit team. Forms were reviewed to determine whether Iwi information was being collected and if so, what question was being used. Iwi numbers were collated from the annual data extract.

RESULTS: Thirty-three of a total of 35 clinics (94%) submitted their enrolment forms to the audit team. Nine of the 33 clinics (27%) sought Iwi name/s with a specific question on their enrolment form. Six different ‘Iwi’ questions were used by the nine clinics. The data extract revealed that the NHC had Iwi data for 13% (2672/20,814) of its Māori enrolments. Ngāpuhi were the largest Iwi group at the NHC.

DISCUSSION: This is the first study to describe the quantity and quality of Iwi data collection in NZ primary care. Standard procedures for collecting, recording and using Iwi data are being developed by the NHC PHO. These could inform national protocols to optimise the quality of Iwi data.

KEYwords: Iwi; Indigenous health data; Primary care; Indigenous data sovereignty; Indigenous identification


References

[1]  United Nations. Indigenous Peoples at the United Nations. New York: United Nations; 2017 [cited 20 Feb 2020]. Available from: https://www.un.org/development/desa/indigenouspeoples/about-us.html

[2]  Attwood B, Marcus A. The 1967 Referendum: race, power and the Australian Constitution. 2nd ed. Canberra: Aboriginal Studies Press, Australian Institute of Aboriginal and Torres Strait Islander Studies; 2007.

[3]  Henry BR, Houston S, Mooney GH. Institutional racism in Australian healthcare: a plea for decency. Med J Aust. 2004; 180 517–20.
Institutional racism in Australian healthcare: a plea for decency.Crossref | GoogleScholarGoogle Scholar | 15139829PubMed |

[4]  United Nations. United Nations Declaration on the Rights of Indigenous Peoples. New York: United Nations; 2007.

[5]  Gagné N. Maori identities and visions: politics of everyday life in Auckland, New Zealand. Montreal: McGill University; 2004.

[6]  Statistics New Zealand. Ethnicity 2020. Available from: https://www.stats.govt.nz/topics/ethnicity

[7]  Jenkins R. Rethinking ethnicity. London: Sage; 2008.

[8]  Statistics New Zealand. New Zealand’s Population reflects growing diversity. 2019. [cited 27 March 2020]. Available from: https://www.stats.govt.nz/news/new-zealands-population-reflects-growing-diversity

[9]  Statistics New Zealand. Deriving the 2018 Māori descent electoral population. 2019. [cited 5 April 2020]. Available from: https://www.stats.govt.nz/methods/deriving-the-2018-maori-descent-electoral-populaton

[10]  Statistics New Zealand. New Zealand Census of Population and Dwellings. Individual form Tuesday 6 March 2018 [Internet]. Statistics New Zealand; 2018. Available from: https://cdm20045.contentdm.oclc.org/digital/collection/p20045coll2/id/713/rec/3

[11]  Kukutai T. The problem of defining an ethnic group for public policy: who is Maori and why does it matter. Soc Policy J N Z. 2004; 23 86–108.

[12]  Kōkiri TP. Te Kāhui Māngai (Directory of Iwi and Māori Organisations). 2017. [cited 2020 April 5]. Available from: http://www.tkm.govt.nz/

[13]  Statistics New Zealand. Iwi statistical standard: September. 2017. [cited 2020 April 13]. Available from: http://archive.stats.govt.nz/methods/classifications-and-standards/current-classifications-and-standards-review/final-iwi-std-2017-review/final-iwi-standard-2017.aspx

[14]  Statistics New Zealand. Iwi and iwi-related groups. 2017. [cited 2020 April 5]. Available from: http://aria.stats.govt.nz/aria/?_ga=2.34191009.1057678527.1586039963-883020159.1576699106#ConceptView:uri=http://stats.govt.nz/cms/Concept/K54WB027ut0v57PH

[15]  Kukutai T, Cormack D. Census 2018 and Implications for Māori. N Z Popul Rev. 2018; 44 131–51.

[16]  Statistics New Zealand. 2013 Census QuickStats about Māori [Internet]. Statistics New Zealand; 2013. Available from: http://archive.stats.govt.nz/Census/2013-census/profile-and-summary-reports/quickstats-about-maori-english/population.aspx

[17]  Te Rūnanga o Ngāi Tahu. State of the Nation. Christchurch: Te Rūnanga o Ngāi Tahu; 2016.

[18]  Ministry of Health. HISO 10001:2017 Ethnicity Data Protocols [Internet]. Wellington: Ministry of Health; 2017. Available from: https://www.health.govt.nz/publication/hiso-100012017-ethnicity-data-protocols

[19]  Statistics New Zealand. Purpose of the Iwi Statistical Standard and Classification. 2018. [cited 2020 March 27]. Available from: https://www.stats.govt.nz/methods/purpose-of-the-iwi-statistical-standard-and-classification

[20]  Health and Disability Ethics Committees. Find out if your study requires HDEC review. 2020. [cited 2020 March 10]. Available from: https://ethics.health.govt.nz/hdec-review-and-approvals/find-out-if-your-study-requires-hdec-review

[21]  Te Mana Raraunga Māori Data Sovereignty Network. Our Data, Our Sovereignty, Our Future. 2017. [cited 2020 April 5]. Available from: https://www.temanararaunga.maori.nz/

[22]  Snipp CM. What does data sovereignty imply: what does it look like? In: Kukutai T, Taylor J, editors. Indigenous Data Sovereignty: Towards an agenda. Canberra: Australian National University Press; 2016. pp. 39–51.

[23]  Rodriguez-Lonebear DJIdsTaa. Building a data revolution in Indian country. In: Indigenous Data Sovereignty: Toward an Agenda, T. Kukutai and J. Taylor, editors. Australia: Australian National University Press. 2016: 253–72.

[24]  Rainie SC, Schultz JL, Briggs E, Riggs P, Palmanteer-Holder NL. Data as a strategic resource: self-determination, governance, and the data challenge for Indigenous nations in the United States. Intl Indigenous Policy J. 2017; 8

[25]  Gifford H, Mikaere K. Te Kete Tū Ātea: towards claiming Rangitīkei iwi data sovereignty. J Indig Wellbeing. 2019; 4 6–14.

[26]  Nikora LW. Race, culture and ethnicity: organisation of Maori social groups. Hamilton; 1995.

[27]  Nei MEN, Roars TN. Ngāti Whātua Ōrakei Health Insurance, The descendents of Tuperiri stand. Auckland; 2018.

[28]  Tūhono. Tūhono. Hamilton. [cited 2020 April 14]. Available from: https://www.tuhono.net/