Pacific people in Aotearoa New Zealand and the treatment of long-term conditions: a narrative literature review about Pacific people’s understandings of health and wellbeing
Lisa Kitione


1
2
3
Abstract
Long-term conditions data for Pacific people show unchanged outcomes over several decades. Research suggests that models of care that recognise diverse understandings of health and wellbeing have benefits for people with long-term conditions and their families and help address longstanding health disparities.
To explore Pacific people’s understandings of health and wellbeing and, within this context, to examine concepts related to long-term conditions models of care.
A narrative review was conducted using broad search terms in key clinical and social science databases and manual searches of Pacific-focused publications to ensure extensive coverage of topics of interest. The methods were well suited to exploring experiential, conceptual themes often underrepresented in systematic reviews.
Eighteen studies produced over a more than 25-year period (1997–2024) were included. The studies describe values and beliefs that form holistic conceptualisations of Pacific health, centred around family and grounded in a collective sense of wellbeing. They provide insights about how these understandings intersect with socioeconomic and environmental factors to shape context-specific experiences of care for Pacific peoples.
The reviewed studies highlight the ‘lived with’ effects of long-term conditions that Pacific people and their families experience. They illustrate how the goals of long-term condition models of care, however desirable, may not seem beneficial or feasible for Pacific families if they neglect other dimensions of wellbeing, or fail to consider constraining contextual factors. Literature that challenges conventional concepts in long-term conditions models of care potentially support appropriate approaches for Pacific people and their families.
Keywords: chronic disease management, health equity, models of care, narrative review, Pacific communities, Pacific health, patient journey, primary health care.
References
1 Health Quality & Safety Commission. Bula Sautu – A window on quality 2021: Pacific health in the year of COVID-19. Health Quality & Safety Commission, NZ: Wellington; 2021. Available at https://www.hqsc.govt.nz/assets/Our-data/Publications-resources/BulaSautu_WEB.pdf [Accessed 7 October 2024].
4 Walsh M, Grey C. The contribution of avoidable mortality to the life expectancy gap in Māori and Pacific populations in New Zealand—a decomposition analysis. N Z Med J 2019; 132(1492): 46-60.
| Google Scholar |
5 PwC, Diabetes New Zealand. The economic and social cost of type 2 diabetes; 2021. Available at https://healthierlives.co.nz/wp-content/uploads/Economic-and-Social-Cost-of-Type-2-Diabetes-FINAL-REPORT_Secure-5.pdf [Accessed 9 October 2024].
6 Feigin VL, Krishnamurthi RV, Barker-Collo S, et al. 30-Year trends in stroke rates and outcome in Auckland, New Zealand (1981-2012): a multi-ethnic population-based series of studies. PLoS One 2015; 10(8): 0134609.
| Crossref | Google Scholar | PubMed |
7 Gurney J, Stanley J, Sarfati D. The inequity of morbidity: disparities in the prevalence of morbidity between ethnic groups in New Zealand. J Comorb 2020; 10: 2235042X20971168.
| Crossref | Google Scholar | PubMed |
8 Ajwani S, Blakely T, Robson B, et al. Decades of disparity: ethnic mortality trends in New Zealand 1980-1999. Wellington: Ministry of Health and University of Otago; 2003. Available at https://www.otago.ac.nz/wellington/otago024494.pdf [Accessed 7 October 2024].
9 Palladino R, Tayu Lee J, Ashworth M, et al. Associations between multimorbidity, healthcare utilisation and health status: evidence from 16 European countries. Age Ageing 2016; 45(3): 431-435.
| Crossref | Google Scholar | PubMed |
10 Barnett K, Mercer SW, Norbury M, et al. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet 2012; 380(9836): 37-43.
| Crossref | Google Scholar | PubMed |
11 National Health Committee. Meeting the needs of people with chronic conditions. Wellington, NZ: Ministry of Health; 2007. Available at https://www.health.govt.nz/system/files/2016-03/meeting-needs-chronic-conditions-feb07.pdf [Accessed 7 October 2024].
12 Reynolds R, Dennis S, Hasan I, et al. A systematic review of chronic disease management interventions in primary care. BMC Fam Pract 2018; 19(1): 11.
| Crossref | Google Scholar |
13 Southwick M, Kenealy T, Ryan D. Primary care for Pacific people: a Pacific health and systems approach. Report to the Health Research Council and the Ministry of Health. Wellington, NZ: Pacific Perspectives Ltd; 2012. Available at https://www.researchgate.net/publication/266318984_Primary_Care_for_Pacific_People_A_Pacific_and_Health_Systems_approach [Accessed 7 October 2024].
14 Pacific Perspectives Ltd. Health care experiences of Pacific families who have children with rheumatic fever: report to Counties Manukau Health; 2009. Wellington, NZ: Pacific Perspectives Ltd; 2009. Available at https://www.nzdoctor.co.nz/sites/default/files/2020-05/2015.06.3%20Pacific%20RhF%20Families%20experience_v1.pdf [Accessed 7 October 2024].
15 Wai KC, Elley CR, Nosa V, et al. Perspectives on adherence to blood pressure-lowering medications among Samoan patients: qualitative interviews. J Prim Health Care 2010; 2(3): 217-224.
| Google Scholar | PubMed |
16 McKinlay E, Graham S, Horrill P. Culturally and linguistically diverse patients’ views of multimorbidity and general practice care. J Prim Health Care 2015; 7(3): 228-235.
| Google Scholar | PubMed |
17 Foliaki S, Matheson A. Barriers to cervical screening among Pacific women in a New Zealand urban population. Asian Pac J Cancer Prev 2015; 16(4): 1565-1570.
| Crossref | Google Scholar | PubMed |
18 Pledger M, Irurzun-Lopez M, Mohan N, et al. An area-based description of closed books in general practices in Aotearoa New Zealand. J Prim Health Care 2023; 15(2): 128-134.
| Crossref | Google Scholar | PubMed |
20 Health New Zealand | Te Whatu Ora. Aotearoa New Zealand Health Status Report 2023. Auckland: Health New Zealand | Te Whatu Ora; 2024. Available at https://www.tewhatuora.govt.nz/publications/health-status-report/ [Accessed 9 October 2024].
21 World Health Organization. Constitution. World Health Organization; 1989. Available at https://apps.who.int/gb/bd/PDF/bd47/EN/constitution-en.pdf?ua=1 [Accessed 9 October 2024].
22 Huber M, Knottnerus JA, Green L, et al. How should we define health? BMJ 2011; 343(7817): 235-237.
| Crossref | Google Scholar |
23 Bodenheimer T, Lorig K, Holman H, et al. Patient self-management of chronic disease in primary care. JAMA 2002; 288(19): 2469-2475.
| Crossref | Google Scholar | PubMed |
24 Carryer J, Doolan-Noble F, Gauld R, et al. New Zealand patients’ perceptions of chronic care delivery’. J Integr Care 2014; 22(2): 71-80.
| Crossref | Google Scholar |
26 Grover A, Joshi A. An overview of chronic disease models: A systematic literature review. Glob J Health Sci 2014; 7(2): 210-227.
| Crossref | Google Scholar | PubMed |
27 Rea H, Kenealy T, Wellingham J, et al. Chronic care management evolves towards integrated care in Counties Manukau, New Zealand. N Z Med J 2007; 120(1252): 2489.
| Google Scholar | PubMed |
28 Boehmer KR, Abu Dabrh AM, Gionfriddo MR, et al. Does the chronic care model meet the emerging needs of people living with multimorbidity? A systematic review and thematic synthesis. PLoS One 2018; 13(2): 0190852.
| Crossref | Google Scholar | PubMed |
29 Askerud A, Jaye C, McKinlay E, et al. What is the answer to the challenge of multimorbidity in New Zealand? J Prim Health Care 2020; 12(2): 118-121.
| Crossref | Google Scholar | PubMed |
30 Greenhalgh T, Thorne S, Malterud K. Time to challenge the spurious hierarchy of systematic over narrative reviews? Eur J Clin Invest 2018; 48(6): 12931.
| Crossref | Google Scholar | PubMed |
31 Sukhera J. Narrative reviews: flexible, rigorous, and practical. J Grad Med Educ 2022; 14(4): 414-417.
| Crossref | Google Scholar | PubMed |
34 Pulotu-Endemann FK. “Fonofale Model of Health” 2001. Presented to Massey University Health Promotion Forum, Wellington; 2009. Available at https://d3n8a8pro7vhmx.cloudfront.net/actionpoint/pages/437/attachments/original/1534408956/Fonofalemodelexplanation.pdf?1534408956 [Accessed 7 October 2024].
35 Tu’itahi S. Why Pasifika health models? Do they work? (From Fonua to Fonua Ola). Presentation on behalf of Health Promotion Forum of New Zealand and Auckland University of Technology, Auckland; 2015. Available at https://hpfnz.org.nz/assets/Uploads/From-Fonua-to-Fonua-Ola.pdf [Accessed 7 October 2024].
36 Mila-Schaaf K. Pacific health research guidelines: the cartography of an ethical relationship. Int J Soc Sci 2009; 60(195): 135-143.
| Crossref | Google Scholar |
37 Paddison CA. Exploring physical and psychological wellbeing among adults with Type 2 diabetes in New Zealand: identifying a need to improve the experiences of Pacific peoples. N Z Med J 2010; 123(1310): 30-42.
| Google Scholar | PubMed |
38 Barnes L, Moss-Morris R, Kaufusi M. Illness beliefs and adherence in diabetes mellitus: a comparison between Tongan and European patients. N Z Med J 2004; 117(1188): U743.
| Google Scholar | PubMed |
39 Mulipola TI, Holroyd E, Vaka S. Using Fa’afaletui to explore Samoan consumers’ experience and interpretation of mental health person‐centred care in Aotearoa, New Zealand. Int J Ment Health Nurs 2023; 32(2): 513-523.
| Crossref | Google Scholar | PubMed |
40 Brewer KM, Taueetia-Su’a T, Hanchard S, et al. Māori and Pacific families’ experiences and perspectives of cardiovascular care; A qualitative study. Aust N Z J Public Health 2024; 48(3): 100149.
| Crossref | Google Scholar | PubMed |
41 Schmidt-Busby J, Wiles J, Exeter D, et al. Understandings of disease among Pacific peoples with diabetes and end‐stage renal disease in New Zealand. Health Expect 2019; 22(5): 1122-1131.
| Crossref | Google Scholar | PubMed |
42 Kaholokula JK, Saito E, Mau MK, et al. Pacific Islanders’ perspectives on heart failure management. Patient Educ Couns 2008; 70(2): 281-291.
| Crossref | Google Scholar | PubMed |
43 Sheridan N, Kenealy T, Salmon E, et al. Helplessness, self-blame and faith may impact on self-management in COPD: a qualitative study. Prim Care Respir J 2011; 20(3): 307-314.
| Crossref | Google Scholar | PubMed |
45 Arlidge B, Abel S, Asiasiga L, et al. Experiences of whānau/families when injured children are admitted to hospital: a multi-ethnic qualitative study from Aotearoa/New Zealand. Ethn Health 2009; 14(2): 169-183.
| Crossref | Google Scholar | PubMed |
46 Sheridan N, Kenealy T, Parsons M, et al. Health reality show: regular celebrities, high stakes, new game: a model for managing complex primary health care. N Z Med J 2009; 122(1301): 31-42.
| Google Scholar | PubMed |
47 Kolandai‐Matchett K, Langham E, Bellringer M, et al. How gambling harms experienced by Pacific people in New Zealand amplify when they are culture‐related. Asian J Gambl Issues Public Health 2017; 7(2017): 5 1-20.
| Crossref | Google Scholar | PubMed |
48 Howden-Chapman P, Bennett J, Edwards R, et al. Review of the impact of housing quality on inequalities in health and well-being. Annu Rev Public Health 2023; 44(1): 233-254.
| Crossref | Google Scholar | PubMed |
49 Durie M, Kingi TK. A framework for measuring Māori mental health outcomes. A report prepared for the Ministry of Health by Massey University, Department of Māori Studies Te Pūmana Hauora; 1997. Available at https://www.massey.ac.nz/documents/513/T_Kingi__M_Duire_A_framework_for_measuring_maori_mental_health_outcomes.pdf [Accessed 7 October 2024].
50 Smith S, Soubhi H, Fortin M, et al. Managing patients with multimorbidity: systematic review of interventions in primary care and community settings. BMJ 2012; 345: e5205.
| Crossref | Google Scholar |
51 Kuluski K, Ho JW, Hans PK, et al. Community care for people with complex care needs: bridging the gap between health and social care. Int J Integr Care 2017; 17(4): 2.
| Crossref | Google Scholar | PubMed |
52 May CR, Masters J, Welch L, et al. EXPERTS 1—experiences of long-term life-limiting conditions among patients and carers: protocol for a qualitative meta-synthesis and conceptual modelling study. BMJ Open 2015; 5: e007372.
| Crossref | Google Scholar | PubMed |
53 Smith SM, Wallace E, O’Dowd T, et al. Interventions for improving outcomes in patients with multimorbidity in primary care and community settings. Cochrane Database Syst Rev 2016; 3(3): CD006560.
| Crossref | Google Scholar | PubMed |
54 Singer M, Bulled N, Ostrach B, et al. Syndemics and the biosocial conception of health. Lancet 2017; 389(10072): 941-950.
| Crossref | Google Scholar | PubMed |
55 Ham C. The ten characteristics of the high-performing chronic care system. Health Econ Policy Law 2010; 5(Pt 1): 71-90.
| Crossref | Google Scholar | PubMed |
56 Mechanic D, Tanner J. Vulnerable people, groups, and populations: societal view. Health Aff (Project Hope) 2007; 26(5): 1220-1230.
| Crossref | Google Scholar | PubMed |
57 Richard L, Furler J, Densley K, et al. Equity of access to primary healthcare for vulnerable populations: the IMPACT international online survey of innovations. Int J Equity Health 2016; 15(2016): 1-20.
| Crossref | Google Scholar | PubMed |
58 Lamb J, Bower P, Rogers A, et al. Access to mental health in primary care: a qualitative meta-synthesis of evidence from the experience of people from ‘hard to reach’ groups. Health 2017; 16(1): 76-104.
| Crossref | Google Scholar |
59 Gkiouleka A, Wong G, Sowden S, et al. Reducing health inequalities through general practice: a realist review and action framework. Health Soc Care Deliv Res 2024; 12(7): 1-104.
| Crossref | Google Scholar | PubMed |
60 Mercer SW, Guthrie B, Furler J, et al. Multimorbidity and the inverse care law in primary care: inequalities set to rise as criteria for funding change in the UK. BMJ 2012; 345(7867): 10.
| Google Scholar |
61 Gray B. The Cynefin framework: applying an understanding of complexity to medicine. J Prim Health Care 2017; 9(4): 258-261.
| Crossref | Google Scholar |
62 Robert G, Cornwell J, Brearley S, et al. ‘What matters to patients’? Developing the evidence base for measuring and improving patient experience; project report for the Department of Health and NHS Institute for Innovation and Improvement. Department of Health. NHS Institute for Innovation & Improvement; London, UK: Department of Health; 2011.
63 Mead N, Bower P. Patient-centredness: a conceptual framework and review of the empirical literature. Soc Sci Med 2000; 51(7): 1087-1110.
| Crossref | Google Scholar | PubMed |
64 Salisbury C. Multimorbidity: redesigning health care for people who use it. Lancet 2012; 380(9836): 7-9.
| Crossref | Google Scholar | PubMed |
65 Øvretveit J. Evidence: does clinical coordination improve quality and save money? London: The Health Foundation; 2011. Available at: https://www.health.org.uk/sites/health/files/DoesClinicalCoordinationImproveQualityAndSaveMoneyVol2_fullversion.pdf [Accessed 9 October 2024].
66 Sheridan N, Kenealy T, Kuluski K, et al. Are patient and carer experiences mirrored in the Practice Reviews of Self-management Support (PRISMS) provider taxonomy? Int J Integr Care 2017; 17(2): 8.
| Crossref | Google Scholar | PubMed |
67 Lau-Walker M, Thompson DR. Self-management in long-term health conditions—A complex concept poorly understood and applied? Patient Educ Couns 2009; 75(2): 290-292.
| Crossref | Google Scholar | PubMed |
68 Ahmad N, Ellins J, Krelle H, et al. Person-centred care: from ideas to action. London: The Health Foundation; 2014. Available at: https://www.health.org.uk/sites/default/files/PersonCentredCareFromIdeasToAction.pdf [Accessed 9 October 2024].
69 Gray B. Bioethics for New Zealand/Aotearoa. N Z Med J 2014; 127(1397): 67-76.
| Google Scholar | PubMed |
70 Kutner NG. Paradigm tension in management of chronic disease. In: Kronenfeld JJ, editor. Reorganizing health care delivery systems: Problems of managed care and other models of health care delivery (Research in the sociology of health care: Volume 21: 107–123). Leeds, UK: Emerald Group Publishing Limited; 2003. 10.1016/S0275-4959(03)21006-1.
71 Betancourt JR, Green AA, Carrillo JE, et al. Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep 2003; 118: 293-302.
| Crossref | Google Scholar | PubMed |
72 Lo MC, Stacey CL. Beyond cultural competency: bourdieu, patients and clinical encounters. Sociol Health Illn 2008; 30(5): 741-755.
| Crossref | Google Scholar | PubMed |
73 Tualaulelei E, McFall-McCaffery J. The Pacific research paradigm: opportunities and challenges. Mai J 2017; 8(2): 188-204.
| Crossref | Google Scholar |
74 Williamson M, Harrison L. Providing culturally appropriate care: a literature review. Int J Nurs Stud 2010; 47(6): 761-769.
| Crossref | Google Scholar | PubMed |
75 Truong M, Paradies Y, Priest N. Interventions to improve cultural competency in healthcare: a systematic review of reviews. BMC Health Serv Res 2014; 14: 99.
| Crossref | Google Scholar | PubMed |