Register      Login
Sexual Health Sexual Health Society
Publishing on sexual health from the widest perspective
RESEARCH ARTICLE

Blind spots in community-based participatory research with sex workers in Singapore: lessons learned and assumptions uncovered in the context of a diverse, hierarchical and stigmatized key population

Sook Lin Toh A B C , Vanessa Ho A , Raksha Mahtani A , Shermaine Koh A , Nur Binte Sarah Pancadarma A , Audrey Kang A , Chen Seong Wong C , Brooke S. West D , Rayner Kay Jin Tan https://orcid.org/0000-0002-9188-3368 E F # * and Pei Hua Lee C #
+ Author Affiliations
- Author Affiliations

A Project X, Singapore, Singapore.

B University of Southern California, Department of Anthropology, Los Angeles, CA, USA.

C National Centre for Infectious Diseases, Singapore, Singapore.

D Columbia University, New York, NY, USA.

E Saw Swee Hock School of Public Health, National University of Singapore and National University Health System, Singapore, Singapore.

F Singapore Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.

* Correspondence to: Rayner.tan@nus.edu.sg

# Co-senior authors

Handling Editor: Jennifer Power

Sexual Health 22, SH24201 https://doi.org/10.1071/SH24201
Submitted: 16 October 2024  Accepted: 22 March 2025  Published: 28 April 2025

© 2025 The Author(s) (or their employer(s)). Published by CSIRO Publishing

Abstract

Community-based participatory research (CBPR) is quickly becoming an ethical standard for research, ensuring that the research processes align with the values of beneficiaries and contributes to broader social justice goals. This paper reflects on a qualitative study on HIV/STI risks in the sex work industry in Singapore that aimed to adopt a CBPR approach. The project was conducted in partnership with a local sex workers’ rights group, Project X, and recruited community members to be part of the research team. The data collection phase of the project lasted for approximately 6 months, involving five focus group discussions (n = 24) and 55 semi-structured interviews, the latter conducted primarily by three community interviewers. Based on an analysis of our fieldnotes and interviews with community interviewers, we found five key themes – capacity building, cultural knowledge, limited flexibility in project design, intra-community dynamics and differences in research interests. These themes reflected the project’s assumptions, adaptations made, limitations and areas of tension. Despite our best efforts to align with CBPR, there were ultimately some pitfalls. This paper reflects on the lessons learned and assumptions uncovered, and advances current understandings of CBPR, particularly in settings where sex work is diverse, hierarchical and remains highly stigmatized or criminalized.

Keywords: CBPR, citizen science, community-based participatory research, community engagement, HIV, sex work, sexually transmitted infections, Singapore.

References

Viswanathan M, Ammerman A, Eng E, et al. Community-based participatory research: assessing the evidence. Evid Rep Technol Assess (Summ) [99] 2004; ; ( ; ( 1-8.
| Google Scholar |

Israel BA, Schulz AJ, Parker EA, et al. Critical issues in developing and following CBPR principles. In: Wallerstein N, Duran B, Oetzel JG, Minkler M, editors. Community-based participatory research for health: advancing social and health equity. John Wiley & Sons, Inc; 2017. pp. 31–44.

Andress L, Hall T, Davis S, et al. Addressing power dynamics in community-engaged research partnerships. J Patient Rep Outcomes 2020; 4(1): 24.
| Crossref | Google Scholar |

Elder BC, Odoyo KO. Multiple methodologies: using community-based participatory research and decolonizing methodologies in Kenya. Int J Qual Stud Educ 2018; 31(4): 293-311.
| Crossref | Google Scholar |

Nnawulezi N, Lippy C, Serrata J, et al. Doing equitable work in inequitable conditions: an introduction to a special issue on transformative research methods in gender-based violence. J Fam Viol 2018; 33(8): 507-513.
| Crossref | Google Scholar |

UNAIDS. HIV and sex workers, in 2023 UNAIDS Global AIDS Update Factsheet. UNAIDS; 2023.

NSWP. “Let’s talk about sex work” – a terminology statement and guide. NSWP; 2024.

Holzer JK, Ellis L, Merritt MW. Why we need community engagement in medical research. J Investig Med 2014; 62(6): 851-855.
| Crossref | Google Scholar |

Reza-Paul S, Lazarus L, Jana S, et al. Community inclusion in PrEP demonstration projects: lessons for scaling up. Gates Open Res 2019; 3: 1504.
| Crossref | Google Scholar |

10  Sen P, Chio MT, Tan HH, Chan RK. Rising trends of STIs and HIV infection in Singapore-- a review of epidemiology over the last 10 years (1994 to 2003). Ann Acad Med Singap 2006; 35(4): 229-235.
| Crossref | Google Scholar |

11  Lobo R, McCausland K, Bates J, et al. Lessons learned from Australian case studies of sex workers engaged in academic research about sex worker health, well-being and structural impediments. In: Bell S, Aggleton P, Gibson A, editors. Peer research in health and social development: international perspectives on participatory research. Abingdon, Oxon, United Kingdom: Routledge; 2021. pp. 233–245.

12  Lobo R, McCausland K, Bates J, et al. Sex workers as peer researchers – a qualitative investigation of the benefits and challenges. Cult Health Sex 2021; 23(10): 1435-1450.
| Crossref | Google Scholar |

13  Hall J, Donelle L, Laliberte Rudman D, et al. “It is important for everyone as humans to feel important, right?” Findings from a community-based participatory needs assessment with street-level sex workers. Soc Work Publ Health 2020; 35(1–2): 33-46.
| Crossref | Google Scholar |

14  Benoit C, Belle-Isle L, Smith M, et al. Sex workers as peer health advocates: community empowerment and transformative learning through a Canadian pilot program. Int J Equity Health 2017; 16(1): 160.
| Crossref | Google Scholar |

15  Rhodes SD, Tanner A, Duck S, et al. Female sex work within the rural immigrant Latino community in the southeast United States: an exploratory qualitative community-based participatory research study. Prog Community Health Partnersh 2012; 6(4): 417-427.
| Crossref | Google Scholar |

16  Weeks MR, Liao S, Li F, et al. Challenges, strategies, and lessons learned from a participatory community intervention study to promote female condoms among rural sex workers in Southern China. AIDS Educ Prev 2010; 22(3): 252-271.
| Crossref | Google Scholar |

17  Cole CA, Edelman EJ, Boshnack N, et al. Time, dual roles, and departments of public health: lessons learned in CBPR by an AIDS service organization. Prog Community Health Partnersh 2013; 7(3): 323-330.
| Crossref | Google Scholar |

18  Parmanand S. Shape-shifting and strategic in/visibility: comparing sex work activism in Singapore and the Philippines. TRaNS: Trans-Regional and -National Studies of Southeast Asia 2024; 12(1): 27-44.
| Crossref | Google Scholar |

19  Jull J, Giles A, Graham ID. Community-based participatory research and integrated knowledge translation: advancing the co-creation of knowledge. Implementation Sci 2017; 12(1): 150.
| Crossref | Google Scholar |

20  Riffin C, Kenien C, Ghesquiere A, et al. Community-based participatory research: understanding a promising approach to addressing knowledge gaps in palliative care. Ann Palliat Med 2016; 5(3): 218-224.
| Crossref | Google Scholar |

21  Duke M. Community-based participatory research. Oxford University Press; 2020.

22  Toubiana M, Ruebottom T. Stigma hierarchies: the internal dynamics of stigmatization in the sex work occupation. Adm Sci Q 2022; 67(2): 515-552.
| Crossref | Google Scholar |

23  Clinical Translational Science Awards Consortium. Community engagement key function committee task force on the principles of community engagement. US Centers for Disease Control and Prevention; 2011.

24  Cordner A, Ciplet D, Brown P, et al. Reflexive research ethics for environmental health and justice: academics and movement-building. Soc Mov Stud 2012; 11(2): 161-176.
| Google Scholar |

25  Mellor A, Benoit C. Understanding the diversity of people in sex work: views from leaders in sex worker organizations. Soc Sci 2023; 12: 191.
| Crossref | Google Scholar |