Shifting power dynamics in global health through youth engagement: a participatory mini-designathon
P. K. Chima
A # * , Y. Babatunde B # , S. Vorkoper C , J. Durham C , A. Goi D , J. Iwelunmor E and J. D. Tucker F G
A
B
C
D
E
F
G
# These authors contributed equally to this paper
Handling Editor: Alissa Davis
Abstract
Although youth engagement has long been explored in civic and political domains, it has only recently become a focus in global health. Traditional youth advisory approaches often suffer from unbalanced power dynamics, where adolescents and young adults are involved peripherally and tokenistically. This limits the relevance and impact of health interventions targeting young people, especially in low- and middle-income countries (LMICs). There is a need for practical, context-appropriate strategies that promote equity and power-sharing in youth engagement.
We developed and piloted a mini-designathon model – a condensed, in-person, design-thinking-based participatory approach that integrates the principles of youth participatory action research. This model was implemented as part of a broader engagement activity co-created with the Adolescent HIV Prevention and Treatment Implementation Science Alliance (AHISA) Youth Advisory Board. Teams of youth and adult researchers collaboratively produced creative outputs around the theme of youth engagement. The structure, implementation considerations, and participant feedback were analysed.
The mini-designathon created a low-cost opportunity for youth and adult researchers to interact as peers in a structured, time-limited setting. Teams collaboratively produced creative outputs – including poems, dances, and illustrations – centred on youth engagement. Post-event feedback suggested that the activity was enjoyable, fostered discussion across age groups, and helped highlight the value of diverse perspectives.
Mini-designathons offer a practical, scalable tool to advance meaningful youth engagement in global health research. By embedding principles of equity and co-creation into participatory design, this model helps shift power dynamics and amplify youth voices, particularly in LMIC contexts. Further application and refinement of this approach can strengthen youth–adult partnerships and improve the design of interventions that affect young people’s health and wellbeing.
Keywords: adolescent, crowdsourcing, equity, low- and middle-income countries, participatory research, resource-limited settings, youth, youth engagement.
References
1 Sanchez S, Thorburn R, Rea M, Kaufman P, Schwartz R, Selby P, et al. A systematic review of theories, models and frameworks used for youth engagement in health research. Health Expect 2024; 27(1): e13975.
| Crossref | Google Scholar |
2 Geffen SR, Wang T, Cahill S, Fontenot HB, Conron K, Wilson JM, et al. Recruiting, facilitating, and retaining a youth community advisory board to inform an HIV prevention research project with sexual and gender minority youth. LGBT Health 2023; 10(2): 93-98.
| Crossref | Google Scholar |
3 Iwelunmor J, Ezechi O, Obiezu-Umeh C, Gbaja-Biamila T, Musa AZ, Nwaozuru U, et al. Tracking adaptation strategies of an HIV prevention intervention among youth in Nigeria: a theoretically informed case study analysis of the 4 Youth by Youth Project. Implement Sci Commun 2023; 4(1): 44.
| Crossref | Google Scholar |
4 WHO. Crowdsourcing in health and health research: a practical guide; 2018. Available at https://wkc.who.int/resources/publications/i/item/2018-07-11-crowdsourcing-in-health-and-health-research-a-practical-guide [cited 16 June 2025]
5 Anikamadu O, Ezechi O, Engelhart A, Nwaozuru U, Obiezu-Umeh C, Ogunjemite P, et al. Expanding youth-friendly HIV self-testing services during the COVID-19 pandemic: qualitative analysis of a crowdsourcing open call in Nigeria. JMIR Form Res 2024; 8: e46945.
| Crossref | Google Scholar |
6 Hlatshwako TG, Obionu I, Zhao Y, Chima K, Ahimbisibwe B, Obiezu-Umeh C, et al. #TheHealthYouthWant: a qualitative analysis of a global crowdsourcing open call for innovative ideas to promote adolescent health and well-being in countries with a high HIV burden. Sex Health 2025; 22(3): SH24175.
| Crossref | Google Scholar |
7 PMNCH. Global consensus statement on meaningful adolescent and youth engagement; 2020. Available at https://pmnch.who.int/resources/publications/m/item/global-consensus-statement-on-meaningful-adolescent-and-youth-engagement [cited 25 August 2024]
8 Bulanda JJ, Bruhn C, Byro-Johnson T, Zentmyer M. Addressing mental health stigma among young adolescents: evaluation of a youth-led approach. Health Soc Work 2014; 39(2): 73-80.
| Crossref | Google Scholar |
9 Maturu L, Ndhlovu PM, Chiduke M, Mazvikite BA. Come and learn: an invitation from Zvandiri Youth Advocates. Lancet Child Adolesc Health 2024; 8: 478-479.
| Crossref | Google Scholar | PubMed |
11 Tieosapjaroen W, Chen E, Ritchwood T, Li C, Conklin JL, Babatunde AO, et al. Designathons in health research: a global systematic review. BMJ Glob Health 2024; 9(3): e013961.
| Crossref | Google Scholar |
12 Ozer EJ. Youth-led participatory action research: overview and potential for enhancing adolescent development. Child Dev Perspect 2017; 11: 173-177.
| Crossref | Google Scholar |
13 Ozer EJ, Abraczinskas M, Duarte C, Mathur R, Ballard PJ, Gibbs L, et al. Youth participatory approaches and health equity: conceptualization and integrative review. Am J Community Psychol 2020; 66(3–4): 267-278.
| Crossref | Google Scholar |
14 Tao Y, Byrne M, Ho D, Zhu Z, Conklin JL, Hlatshwako TG, et al. HIV interventions across the care continuum for adolescents in high-burden countries: a systematic review and meta-analysis. eClinicalMedicine 2024; 78: 102989.
| Crossref | Google Scholar |
15 Ashdown H, Jalloh C, Wylie JL. Youth perspectives on sexual health workshops: informing future practice. Qual Health Res 2015; 25(11): 1540-1550.
| Crossref | Google Scholar |
16 Rodríguez LF, Brown TM. From voice to agency: guiding principles for participatory action research with youth. New Dir Youth Dev 2009; 2009(123): 19-34 11.
| Crossref | Google Scholar |
