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Journal of the Australasian Society for the Study of Brain Impairment
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Brain Impairment

Brain Impairment

Volume 26 Number 4 2025

IB24142An exploratory study of working alliance in traumatic brain injury peer support

Alyssa Turcott 0009-0003-9571-5892, Janna Griffioen, Kix Citton, Emily Nalder, W. Ben Mortenson and Julia Schmidt

In peer support, a working alliance – or collaborative relationship between mentor and mentee – facilitates better health outcomes for participants. Our study aimed to examine working alliances in traumatic brain injury peer support; findings indicated working alliance is facilitated through conversations that validate an individual’s experiences of traumatic brain injury, and personal growth in self-acceptance and hope of both the peer support receiver and worker. Findings inform traumatic brain injury peer support programs of key design considerations to increase working alliance.

This article belongs to the collection: Collaboration, Co-production, & Co-design: Moving Ahead in Brain Impairment.

IB25013The emotional journey through the stages of primary progressive aphasia: seven co-produced care pathway recommendations for clinical practice

Anna Volkmer 0000-0002-4149-409X, Yin Boll, Margaret Dibben, Vanessa Ward, Rosemary Townsend, Jason D. Warren, Chris J. D. Hardy and

Primary progressive aphasia (PPA) describes a group of language-led dementias for which the main treatment is speech and language therapy. Six stages of PPA have been described by Hardy et al. 2024a, 2024b, reflecting a verbal and non-verbal symptoms that progress inexorably over time. Informed by the People with Aphasia and Other Layperson Involvement framework for guiding patient and public involvement in aphasia research, this study used World Café and survey methods to co-produce a care pathway for PPA.

This article belongs to the collection: Collaboration, Co-production, & Co-design: Moving Ahead in Brain Impairment.

This paper describes a six-stage co-design process drawing on a co-design group made up of people with acquired brain injury, practicing health professionals and researchers, and injury and disability insurers. This work was coupled with large stakeholder engagement across three online health professional workshops and one in-person workshop. The resulting co-produced Framework for Evaluation of Assistive Technology is now available for use by health professionals and people with acquired brain injury via a free website, called My Technology Space.

This article belongs to the collection: Collaboration, Co-production, & Co-design: Moving Ahead in Brain Impairment.

The article describes the process of developing a smart device application (app) for people with acquired brain injury. The app was developed through a series of workshops that involved people with acquired brain injury, their support people, health professionals who work in acquired brain injury rehabilitation, technology designers and the research team. Learnings from the process are outlined, including recommendations for people who wish to use this approach in the future.

This article belongs to the collection: Collaboration, Co-production, & Co-design: Moving Ahead in Brain Impairment.

IB24145Community partnered peer support after traumatic brain injury: a feasibility case study

Janna Griffioen 0000-0003-1322-0814, Alyssa Turcott 0009-0003-9571-5892, Kix Citton, Adele Rogers, Courtney L. Pollock, Bill Miller, Brodie M. Sakakibara, Nick Bansback, Derry Dance, Amy Schneeberg, Noah D. Silverberg, W. Ben Mortenson, Janice J. Eng and Julia Schmidt

Peer support programs can help people with brain injury, but the program needs to have a structure to work well. This study tested a peer support program for those living with brain injury, and found the program could bring people in, maintain high attendance and coordinate resources proficiently. The peer support program achieved some positive outcomes for the three participants in this study. Future research is needed with more participants to evaluate the benefits of peer support.

This article belongs to the collection: Collaboration, Co-production, & Co-design: Moving Ahead in Brain Impairment.

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