The healthcare needs of a cohort of kindergarten children in a rural New South Wales community: a medical record review
Catherine V. Sanford A * , Emily K. Saurman B C , Danielle K. White A , Karen Harding-Smith A D , Rebecca J. Smith D , Sarah M. Dennis E F , Armando Teixeira-Pinto C G and David M. Lyle HA
B
C
D
E
F
G
H
Abstract
To quantitatively describe the healthcare needs of a cohort of kindergarten children in a low-socioeconomic rural community to inform school entry health check programs and school-based healthcare services.
Medical record review.
Data were extracted from the community health electronic medical records of children who started primary school in 2019 at one of the five study schools and who received at least one occasion of service from a nurse-led School-Based Primary Health Care Service for a health or developmental concern. Data extracted included demographics, presenting concerns, challenges to accessing care, service activities, and referrals.
Of the 140 children enrolled in kindergarten in the sample schools, 84 (60%) had an occasion of service for a health or developmental concern. Of these 84 children, speech and language concerns (43%) were most frequently observed, followed by metabolic/nutrition (26%), behaviour (16%), and vision (16%) concerns. Evidence of challenges to accessing care was identified in 40% of cases. Sixty percent of identified children were referred to another provider.
The high prevalence of health and developmental concerns and challenges to accessing care found in this study supports the need for school entry health check models that provide ongoing support to families.
Keywords: access to care, Australia, health and development, kindergarten children, low-socioeconomic communities, primary health care, rural communities, school entry health checks, school health services.
Introduction
The importance of a positive transition to school is well established.1 Children’s initial adjustments to school are crucial to their development, wellbeing, and educational trajectories; however, children from low-socioeconomic backgrounds are at increased risk of health problems, school adjustment difficulties, and poorer academic outcomes.2,3
The Australian National Framework for Universal Child and Family Health Services identifies school entry as a key time for health services to support children and families and advises that children receive health checks and vision screening before commencing primary school.4 These checks usually fall under the remit of child and family health services, which cover the period in a child’s life from birth to 5 years of age. Access to these services generally requires caregiver initiative, particularly after the infant stage when checks become less frequent. Less-advantaged families face a number of barriers that impact their ability to attend routine health checks and access services when further assessment or treatment is required.5 Recent reports from New South Wales (NSW) indicate that almost half of children starting school have not received all the recommended health and development checks.6
Health service provision at schools can overcome some of the barriers to accessing health checks and other services. In Australia, primary school attendance is compulsory, and various models of school-based and school-linked healthcare services exist, including school-based clinics,7 visiting school-nurse services,8,9 and school-based nursing services.10–12 Some school healthcare services provide universal school entry health checks,8,9 whereas others do not.12 The degree of integration of services with schools also varies; some act as an external visiting service, whereas others are integrated with education teams.10–12
The School-Based Primary Health Care Service (SB-PHCS) is a nurse-led, school-integrated service that provides school entry health checks, care navigation, and health promotion to students and their families. The service’s Primary Health Care Registered Nurses (PHCRN) first conducted school entry health checks in 2019. The checks were completed alongside the NSW Best Start Kindergarten Assessment.13 In NSW, the first year of primary school is known as ‘kindergarten’. Children can start kindergarten between the ages of 4.5 and 6 years. The health checks were completed via face-to-face meetings with children and their carers, during which carers completed the 60-month Ages and Stages Questionnaire and the 60-month Ages and Stages Questionnaire: Social Emotional.14 Carers were also asked about their child’s medical history, health service usage, sleep habits, and preschool attendance, and children’s height and weight were measured. Care navigation was provided if further assessment or service access was required. Care navigation is an approach to improving service access in underserved communities and involves identifying and addressing barriers to care and linking patients to services.15 In addition to school entry health checks, kindergarten children were also identified for care navigation by referrals from teachers, carers, and service providers.
This paper describes the kindergarten population from a medical record review of SB-PHCS primary school clients. It quantitatively describes the healthcare needs of the kindergarten cohort and assesses the role of school entry health checks in identifying children in need of healthcare services.
Methods
Setting
Between 2017 and the beginning of 2019, the SB-PHCS was implemented in five public primary schools in a community in far west NSW, Australia. In 2019, 140 children were enrolled in kindergarten at these schools.16 The schools are located in a socioeconomically disadvantaged town of around 17,500 people that is 300 km from the next largest town and 500 km from the nearest regional centre. The town has six public primary schools, but one school did not have a PHCRN until mid-2019, so has been excluded from this study. All local public primary schools had below average Index of Community Socio-Educational Advantage (ICSEA) scores, with four of the study schools and the excluded school having scores below the national 15th percentile.17 Lower ICSEA scores indicate a greater disadvantage.
Study design
We conducted a medical record review of the Community Health and Outpatient Care program electronic medical records (EMRs) of kindergarten children who were referred to the SB-PHCS in 2019 and received at least one occasion of service for a health or developmental concern.
Case finding procedures
A list of SB-PHCS clients within the primary school age range, who received at least one occasion of service during 2019, was extracted from the EMR system. Records were excluded if the client did not have a health or development concern identified, was not in primary school in 2019, or if the referral was not made during 2019. The remaining 270 SB-PHCS cases were followed until 30 June 2020. Eighty-four of these cases were identified as kindergarten students from the five study schools. This paper describes the analysis of this subset of records.
Data collection
Data extracted included:
demographics: date of birth, sex, school year, school
details of referral to the SB-PHCS: date, source, presenting concerns
challenges to accessing care evident in the record
service activities: number of service interactions, types of care navigation provided
details of referrals to other services.
Data were extracted from PHCRN nursing notes in EMRs and entered into a purpose-designed data collection form on the Research Electronic Data Capture (REDCap) platform.18 One research nurse was the primary data collector and a second acted as an auditor. Both nurses have experience in school nursing, which assisted in the interpretation required to extract data from narrative progress notes.
Presenting concerns were coded using the International Classification of Primary Care (ICPC-2-R).19 Problems falling under code ‘P22 Child behaviour symptom/complaint’ were sub-coded into ‘speech/language’, ‘behaviour’, and ‘learning’ to specify frequently observed concerns. For analysis, the remaining ICPC-2-R codes were grouped into the following categories: metabolic/nutrition, eyes/vision, sensory/motor, unspecified development/behaviour, attention deficit hyperactivity disorder/autism, ears/hearing, mental health, family/social, asthma, other.
An established model of care navigation15 was used to categorise service activities. We modified this model, excluding ‘clinical trials and peer support’ and adding ‘communication coordination’ to account for the nature of care navigation in the school setting, where sharing health information between schools, families, and care providers is a key activity.10 Activities included under each category are shown in Table 1.
Category | Included activities | |
---|---|---|
Basic navigation | Introduce the service, identify and problem solve issues/needs, health education, reduce mistrust, emotional support, follow-up. | |
Referrals to other services | Make a referral to another service, support another person to make a referral (e.g. teacher, GP). | |
Care coordination | Schedule appointments, prepare clients for appointments, provide or arrange transport, attend appointment with client. | |
Treatment support | Discuss, explain, or reinforce treatment plans with child/parent, school staff, or other providers. Support decision-making processes about treatment. | |
Communication coordination | Facilitate/coordinate communication between school and providers, providers and family, or school and family. |
Adapted from Wells et al.15
Evidence of challenges to accessing care were categorised as family-related or service-related. Family-related challenges included not appreciating a need for care; needing help to identify services; lacking resources, such as transport and money; and needing help to communicate with services. Service issues included availability and accessibility of services.
Results
Eighty-four kindergarten students were referred to the SB-PHCS with health or developmental concerns; this represents 60% of 2019 kindergarten enrolments16 at the sample schools (Fig. 1).
Population, sample, and cases in the study of health needs of kindergarten children in a rural New South Wales community.

Of the children with identified health and development concerns, there was an even gender split (Table 2). Speech and language issues were the most frequently observed concern (43%), followed by metabolic/nutrition (26%). Evidence of challenges to accessing care was found in the records of 40% of the identified children.
n | % | ||
---|---|---|---|
Sex | |||
Male | 42 | 50 | |
Female | 42 | 50 | |
Referral source | |||
Kindergarten health check | 72 | 86 | |
School staff | 9 | 11 | |
External service | 3 | 4 | |
Presenting concernsA | |||
Speech/language | 36 | 43 | |
Metabolic/nutrition | 22 | 26 | |
Behaviour | 13 | 15 | |
Eyes/vision | 13 | 15 | |
Learning | 12 | 14 | |
Sensory/motor | 12 | 14 | |
Unspecified development/behaviourB | 8 | 10 | |
Attention deficit hyperactivity disorder/autism | 6 | 7 | |
Ears/hearing | 5 | 6 | |
Mental health | 4 | 5 | |
Family/social | 3 | 4 | |
Asthma | 2 | 2 | |
OtherC | 17 | 20 | |
Duration of presenting concerns | |||
Known,D longstanding issues (≥12 months) | 43 | 51 | |
Recently identified issues (<12 months) | 34 | 40 | |
Unclear | 7 | 8 | |
Evidence of challenges to accessing care | 34 | 40 | |
Family-related challenges | 16 | 19 | |
Service-related issues | 10 | 12 | |
Both family and service issues | 8 | 10 |
Almost all children received basic navigation (95%), and most children (63%) were referred to another service (Table 3). Most referrals were made directly by a PHCRN, but for some children, a PHCRN assisted or prompted another person outside the family to make a referral. This included supporting school staff to make referrals to Child and Adolescent Mental Health Services, student-led school-based allied health services, or social-care services, and when a PHCRN felt a child needed a specialist referral and referred to a general practitioner (GP) to facilitate the referral. The PHCRNs coordinated communication for many children (52%), most frequently between schools and service providers. Fewer children received treatment support (14%).
Care navigation activityA | n | % | |
---|---|---|---|
Basic navigation | 80 | 95 | |
Communication coordination | 44 | 52 | |
Between school and providers | 29 | 35 | |
Between providers and family | 18 | 21 | |
Between school and family | 12 | 14 | |
Referrals made to other services | 53 | 63 | |
PHCRN directly made referral | 50 | 60 | |
PHCRN assisted/prompted another to make referral | 20 | 24 | |
Care coordination | 17 | 20 | |
Treatment support | 12 | 14 | |
For child/parent | 11 | 13 | |
For school staff | 8 | 10 | |
Discuss treatment with other provider | 3 | 4 |
Children with longstanding issues had more service interactions than those whose issues were more recently identified (Table 4). A smaller, but still substantial, percentage of those with longstanding issues were referred to other services. In total, 92 referrals were made for 53 children.
n | Number of SB-PHCS interactions | Referred to other services | ||||
---|---|---|---|---|---|---|
Median | IQR | n | % of Duration of concerns | |||
Duration of concerns | ||||||
Known,A longstanding issues (≥12 months) | 43 | 6 | 4–12 | 24 | 56 | |
Recently identified issues (<12 months) | 34 | 5 | 3–7 | 23 | 68 | |
Unclear | 7 | 3 | 2–6 | 6 | 86 | |
All cases | 84 | 6 | 3–8 | 53 | 63 |
Discussion
We found that more than half of the kindergarten children in the study schools were supported by the SB-PHCS for health and developmental concerns. Most of these children were identified by school entry health checks. Half of the children identified had longstanding issues and 40% had challenges to accessing care. Direct comparisons with other data are difficult because of differences in collection methods, but overall, the evidence suggests significant health and support needs at school entry in this community.
The proportion of children identified in our study was higher than local (23–31%) and national (22%) estimates of developmental vulnerability by the two most recent Australian Early Development Censuses (AEDCs).20 The AEDC is, however, designed for population surveillance, based on teacher observation, and has poor sensitivity and low correlation with parent reports and interviewer directly assessed measures.21 Evidence of high local need has been reported in previous developmental screening conducted by allied health professionals and students. This screening found that 71% of kindergarten children required support with mild to moderate delays.22 This data included nearby remote communities, which are known to experience higher rates of developmental vulnerability. This finding accords with our higher estimate of need in this group. Comparative data from NSW were not available, but the 2019 Victorian school entrant health questionnaire found that 22% of children screened were at high risk of developmental or behavioural problems23 (language, motor skills, self-help, academic, behaviour, and social–emotional), and 15% reportedly had a speech and language difficulty. Both findings are lower than those of the current study.
The most frequently identified concerns in our cohort were about speech and language (42% of identified cases and 26% of kindergarten children in the sample schools). Speech and language skills underpin all areas of learning, and deficits are associated with future mental health difficulties, lower academic achievement, lower socioeconomic status, and behaviour and relationship problems.24 Behaviour and learning concerns were also prevalent. Childhood behavioural problems have similarly been found to impact educational attainment and be associated with later contact with criminal justice systems.25 The importance of early intervention for these issues is well documented.26
For many children in the study, health and developmental concerns had only recently been raised. Ideally, these concerns would be identified and addressed before starting school, but children from disadvantaged families are less likely to access health services5 and early childhood education,27 reducing the opportunities for problems to be identified. In socioeconomically disadvantaged communities, entry to primary education may be the opportune time for screening. Families may be difficult to access before this point, and if issues are left to be identified by teachers or parents, they may not become apparent until later in a child’s schooling. Later identification of problems may mean a greater impact on educational achievement and lower access to services. Due to workforce shortages, high demand, and the greater benefits of early intervention, some paediatric services necessarily limit services to younger children.28 We have observed incidences of children missing out on allied health services because, by the time they reached the top of the waiting list, they were too old to meet the eligibility criteria.
Health checks in preschools may go some way to ameliorating issues of delayed identification. Funding structure reforms have increased access to preschool; however, attendance is not compulsory and enrolment rates are still lower for the least advantaged,27 meaning at-risk children will still be missed. Preschool health check programs should also consider ensuring continuity of care through the transition to school for those who require additional support to access services and manage their condition at school. This could be achieved by extending their services to school age or coordinating with existing school-based services.
Fifty-one percent of children identified by the SB-PHCS had issues that were already known; however, more than half of these children were referred to another service by the SB-PHCS, suggesting that although concerns had been raised, there was a significant unmet need for services. Forty percent of records reviewed provided evidence that families had challenges accessing care, such as a lack of transport, money, or the skills to navigate the health system. In less-advantaged communities, simply screening and referring may not be enough, as families often need support to access assessments and ongoing care. The SB-PHCS was developed to respond to these challenges by addressing both the needs of families and the complexity of the healthcare system. The service provides ongoing support to families and is co-located in schools, while being funded and managed by the Local Health District. This embeddedness and longer-term engagement allow the SB-PHCS to develop relationships with families and schools to address family-related challenges, while maintaining links with the health system to facilitate service access for children.10 This three-way communication is key to the service model, and the current study found that the PHCRNs coordinated communication for most children in the cohort. Qualitative data from an associated study found that the school-embedded health check model and face-to-face information sharing enhanced teachers’ knowledge of students and helped them to monitor for, quickly identify, and address issues arising in the classroom.10 For the PHCRNs, the health checks established relationships with families. Screening and surveillance activities are important opportunities for health professionals to form therapeutic relationships with vulnerable families.29 These relationships are integral to effectively supporting less-advantaged children’s transition to school and educational journey.
Limitations
This study used existing medical records, the documentation of which was not designed with our variables of interest in mind. Documentation practices, including the level of detail documented, varied between clinicians, and a level of interpretation was required to extract the data from narrative progress notes. In particular, our identification of barriers to accessing care and care navigation activities may be conservative. Our data collection period included the first 6 months of 2020, which coincided with NSW’s directive for learning from home for children of non-essential workers. This directive was in place for 2 months. During this period, the PHCRNs were redeployed to the COVID-19 response for a period of 4 weeks. As a result, the volume of activity reported here may be less than expected during an equivalent period of uninterrupted service activity.
Conclusion
The National Framework for Universal Child and Family Health Services acknowledges that some families need additional support to access services. Most kindergarten children in this rural community had concerns raised about their health or development, and a substantial proportion of families had challenges accessing care. In disadvantaged communities, where children are more likely to have health and developmental concerns and are less likely to access early childhood education, school entry is an opportune time for screening. Preschool and school entry health check models in less-advantaged communities should facilitate the sharing of relevant information with schools and support families managing identified issues and accessing relevant services throughout their child’s transition to school and beyond.
Data availability
Due to ethical concerns/commercial restrictions, supporting data cannot be made openly available. The authors can provide further information about the conditions for access.
Conflicts of interest
KHS worked as a PHCRN within the SB-PHCS during study design and data collection. RS worked as the manager of the SB-PHCS.
Declaration of funding
The Broken Hill University Department of Rural Health is funded by the Australian Government Department of Health. This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors.
Author contributions
All authors contributed to the conception and design of the study. DW and KHS collected the data, and CS analysed the data and drafted the manuscript. All authors contributed to critical revisions of the manuscript and agreed to be accountable for all aspects of work ensuring integrity and accuracy.
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