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Australian Journal of Primary Health Australian Journal of Primary Health Society
The issues influencing community health services and primary health care
RESEARCH ARTICLE (Open Access)

Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study

Srivalli V. Nagarajan A B M , Virginia Lewis C , Elizabeth Halcomb https://orcid.org/0000-0001-8099-986X D , Joel Rhee https://orcid.org/0000-0002-5233-2758 E F , Rachael L. Morton G , Geoffrey K. Mitchell H , Jennifer Tieman I , Jane L. Phillips J , Karen Detering K , Jennifer Gavin L and Josephine M. Clayton A B
+ Author Affiliations
- Author Affiliations

A Centre for Learning and Research in Palliative Care, HammondCare, Greenwich Hospital, Sydney, NSW, Australia.

B Northern Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.

C Australian Institute for Primary Care and Ageing, La Trobe University, Melbourne, Vic., Australia.

D School of Nursing, The University of Wollongong, Wollongong, NSW, Australia.

E Centre for Positive Ageing and Care, HammondCare, Sydney, NSW, Australia.

F Graduate School of Medicine, The University of Wollongong, Wollongong, NSW, Australia.

G NHMRC Clinical Trials Centre, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.

H Mayne Academy of Primary Care, Faculty of Medicine, University of Queensland, Brisbane, Qld, Australia.

I Research Centre for Palliative Care, Death and Dying, Flinders University, Adelaide, SA, Australia.

J Faculty of Health, School of Nursing, Queensland University of Technology, Brisbane, Qld, Australia.

K Department of Health, Arts and Design, Swinburne University, Melbourne, Vic., Australia.

L Centre for Cancer and Palliative Care Outcomes, Faculty of Health, Queensland University of Technology, Brisbane, Qld, Australia.

M Corresponding author. Email: srivalli.nagarajan@sydney.edu.au

Australian Journal of Primary Health 28(2) 151-157 https://doi.org/10.1071/PY21081
Submitted: 22 April 2021  Accepted: 10 November 2021   Published: 8 February 2022

Journal Compilation © CSIRO 2022 Open Access CC BY-NC-ND

Abstract

Primary care settings are ideal for initiating advance care planning (ACP) conversations and assessing palliative and supportive care needs. However, time constraints and a lack of confidence to sensitively and efficiently initiate such discussions are noted barriers. The Advance Project implemented a national multicomponent training package to support Australian general practice nurses (GPNs) to work with GPs to initiate ACP and palliative care conversations in their practice. This paper reports on semistructured interviews conducted with 20 GPNs to explore barriers and facilitators to implementing the Advance Project model. Participants identified a range of factors that affected implementation, including lack of time, limited support from colleagues, lack of knowledge about systems and funding processes in general practice and a need for better alignment of the Advance Project resources and practices with general practice information management platforms. Barriers related to professional roles, particularly the lack of clarity and/or limitations in the scope of practice of GPNs, highlighted the importance of defining and supporting the roles that different primary health practice staff could play to support implementation of the model. The findings underline the need for complementary training in the Advance Project model for GPs and practice managers to enable a team-based approach to implementation.

Keywords: advance care planning, general practice, primary healthcare, palliative care, general practice nurses, patient care.


References

Braun V, Clarke V (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77–101.
Using thematic analysis in psychology.Crossref | GoogleScholarGoogle Scholar |

Cane J, O’Connor D, Michie S (2012) Validation of the theoretical domains framework for use in behaviour change and implementation research. Implementation Science 7, 37
Validation of the theoretical domains framework for use in behaviour change and implementation research.Crossref | GoogleScholarGoogle Scholar | 22530986PubMed |

Crimmins RM, Elliott L, Absher DT (2021) Palliative care in a death-denying culture: exploring barriers to timely palliative efforts for heart failure patients in the primary care setting. The American Journal of Hospice & Palliative Care 38, 77–83.
Palliative care in a death-denying culture: exploring barriers to timely palliative efforts for heart failure patients in the primary care setting.Crossref | GoogleScholarGoogle Scholar |

Fitch MI (1994) Providing supportive care for individuals living with cancer (Task Force Report). Toronto: Ontario Cancer Treatment and Research Foundation.

Franklin AE, Rhee J, Raymond B, Clayton JM (2020) Incorporating an advance care planning screening tool into routine health assessments with older people. Australian Journal of Primary Health 26, 240–246.
Incorporating an advance care planning screening tool into routine health assessments with older people.Crossref | GoogleScholarGoogle Scholar | 32327028PubMed |

Lawrence M, Tieman J (2016) A rapid review of tools to support palliative care and advance care planning in general practice. Report submitted to the Australian Government Department of Health.

Lund S, Richardson A, May C (2015) Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies. PLoS One 10, e0116629
Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies.Crossref | GoogleScholarGoogle Scholar | 25679395PubMed |

McInnes S, Peters K, Bonney A, Halcomb E (2015) An integrative review of facilitators and barriers influencing collaboration and teamwork between general practitioners and nurses working in general practice. Journal of Advanced Nursing 71, 1973–1985.
An integrative review of facilitators and barriers influencing collaboration and teamwork between general practitioners and nurses working in general practice.Crossref | GoogleScholarGoogle Scholar | 25731727PubMed |

McInnes S, Peters K, Bonney A, Halcomb EJ (2017) A qualitative study of collaboration in general practice: Understanding the general practice nurse’s role. Journal of Clinical Nursing 26, 1960–1968.
A qualitative study of collaboration in general practice: Understanding the general practice nurse’s role.Crossref | GoogleScholarGoogle Scholar | 27681042PubMed |

Miller H, Tan J, Clayton JM, Meller A, Hermiz O, Zwar N, Rhee J (2019) Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study. BMC Palliative Care 18, 25
Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study.Crossref | GoogleScholarGoogle Scholar | 30841925PubMed |

Nagarajan S, Rhee J, Mitchell G, Lewis V, Tieman J, Halcomb E, Detering K, Morton R, Phillips J, Costa D, Clayton JM (2019) Evaluation of the Advance Project (Phase 1) [Abstract]. In ‘RACGP GP19 Conference’, 26 October 2019, Adelaide, SA, Australia.

Phillips CJ, Marshall AP, Chaves NJ, Jankelowitz SK, Lin IB, Loy CT, Rees G, Sakzewski L, Thomas S, To T-P, Wilkinson SA, Michie S (2015) Experiences of using the Theoretical Domains Framework across diverse clinical environments: a qualitative study. Journal of Multidisciplinary Healthcare 8, 139–146.

Program of Experience in the Palliative Approach (2021) About Program of Experience in the Palliative Approach (PEPA). Available at https://pepaeducation.com/about-pepa/ [Verified 1 December 2021]

Royal Australian College of General Practitioners (RACGP) (2016) Advance care planning. Available at https://www.racgp.org.au/running-a-practice/practice-resources/practice-tools/advance-care-planning [Verified 14 September 2020]

Reeks R, Padmakumar G, Andrew B, Huynh D, Longman J (2020) Barriers and enablers to implementation of antenatal smoking cessation guidelines in general practice. Australian Journal of Primary Health 26, 81–87.
Barriers and enablers to implementation of antenatal smoking cessation guidelines in general practice.Crossref | GoogleScholarGoogle Scholar |

Rogers J, Goldsmith C, Sinclair C, Auret K (2019) The advance care planning nurse facilitator: describing the role and identifying factors associated with successful implementation. Australian Journal of Primary Health 25, 564–569.
The advance care planning nurse facilitator: describing the role and identifying factors associated with successful implementation.Crossref | GoogleScholarGoogle Scholar | 31738875PubMed |

Slort W, Schweitzer BP, Blankenstein AH, Abarshi EA, Riphagen II, Echteld MA, Aaronson NK, Van der Horst HE, Deliens L (2011) Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review. Palliative Medicine 25, 613–629.
Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review.Crossref | GoogleScholarGoogle Scholar | 21273221PubMed |

Stephen C, McInnes S, Halcomb E (2018) The feasibility and acceptability of nurse-led chronic disease management interventions in primary care: an integrative review. Journal of Advanced Nursing 74, 279–288.
The feasibility and acceptability of nurse-led chronic disease management interventions in primary care: an integrative review.Crossref | GoogleScholarGoogle Scholar | 28880393PubMed |

Tong A, Sainsbury P, Craig J (2007) Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care 19, 349–357.
Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.Crossref | GoogleScholarGoogle Scholar | 17872937PubMed |

World Health Organization (WHO) (2016) Palliative care. Available at http://www.who.int/cancer/palliative/definition/en/ [Verified 15 September 2020]